30 Days of MD: Crystal Rondeau

30 Days of MD: Crystal Rondeau

View this post on Instagram

Day 10 of 30 Days of MD Topic: Medical Knowledge and MD This is @crystaleemarie’s story: I'm Crystal Rondeau and I have a form of MD called Spinal Muscular Atrophy Type 2. My family got the diagnosis when I was 1 1/2 years old. This diagnosis was the start of a very long battle. Every battle has losses, pain, struggles, times where you just want to throw your weapons down in defeat. They also have bittersweet triumphs. At 3 years old, SMA2 started affecting my respiratory system so badly that I would battle over 300 pneumonias and collapsed lungs by age 12. This is unheard of. Doctors and nurses could not understand how I was still winning by the age of 7. I had also spent so much time in the hospital that I developed a thirst for medical knowledge. I'd read the nursing textbooks, I learned how to read my own x-rays, I was helping make my medical decisions. I was comfortable in the medical world where most kids aren’t. The nurses and doctors became my friends, family and mentors. From a very young age, the staff and my mom taught me this… You can take your situation, no matter how painful, dark and difficult, and turn it into something powerful. At 5 years old I began allowing resident doctors, student nurses, families and other patients to learn from me. My form of MD has continuously thrown different foes at me. At 13 years old I was diagnosed with Acute Lymphoblastic Leukemia…it wasn’t MD related but I am the first person in the world with ALL and my form of MD. My doctor had to figure out how to treat me without damaging or killing me. And I had to use everything in me to beat it. I didn’t come out unscathed but I won. A few years later there was a girl in Europe who was presented with the same battle, and her doctors used my treatment plan to help her. How has MD affected my life? There is no way I could choose just one aspect because it is my life and it’s the reason I am who I am. Sure, it has beaten me, broken me and scarred me but it has also made me strong, resilient, determined and a teacher. It’s even given me the drive to be a model and activist. I honestly wouldn’t trade that for anything. #MDAwarenessMonth #MDAwareness #30DaysofMD

A post shared by MDNewsToday (@mdnewstoday) on

Latest Posts

How useful was this post?

Click on a star to rate it!

Average rating 0 / 5. Vote count: 0

No votes so far! Be the first to rate this post.

As you found this post useful...

Follow us on social media!

We are sorry that this post was not useful for you!

Let us improve this post!

Tell us how we can improve this post?