Author Archives: Betty Vertin

Preparing to Be Caregivers for Adults With Duchenne MD

Three of my boys were diagnosed with Duchenne muscular dystrophy when they were small. We’ve spent many years preparing to be caregivers for them as adults with Duchenne. We remodeled our home, added ramps to the front and back of our house, and upgraded to a wheelchair-accessible van. The…

Why I Love the Ordinary Moments of Motherhood

I love the everyday, ordinary moments of motherhood. Maybe I’m crazy, but the laundry (no matter how never-ending), groceries, menu planning, and chauffeuring of kids all bring me so much joy! Duchenne muscular dystrophy can be a thief of that joy. Duchenne is hard to plan for, and because…

My Sons Decide Whether to Attend the Homecoming Dance

It’s homecoming week here in Nebraska. Our local high school has its homecoming football game today, and the dance is tomorrow. I love homecoming. It’s a time of fun and excitement. The crowd at the football game always seems full of extra energy. The kids get dressed up and…

When Mom Is Tired, Caregiving Is Hard

I saw a meme today that said, “I need a day between every day to recover from the day before and prepare for the upcoming day.” I could not have identified with anything more today. If you haven’t guessed it yet, I am exhausted. I was a single caregiver and…

My Son Is Living a Fuller Life Than We Ever Imagined

My oldest son with Duchenne muscular dystrophy, Max, starts his sophomore year in high school this week. He will be halfway through his high school education by the end of the school year. For a long time, I was afraid to look too far into his future. At diagnosis, a…

6 Ideas for Back-to-School Success

My kids return to school next week. As always, there is so much to do to get ready. In addition to back-to-school shopping and open house, I have to ensure Max, Rowen, and Charlie, my sons with Duchenne muscular dystrophy (DMD), will be successful and that their school is…