Photo courtesy of Sarah Lacey Day 20 of 30 This is Sarah Lacey’s story: My son Sam is 17 years old and has Duchenne muscular dystrophy (DMD). He was diagnosed when he was 5 and needed to be in a wheelchair full time by age 10. DMD is…
30 Days of Muscular Dystrophy
Photo courtesy of Zee Zelinski Day 30 of 30 This is Zee Zelinski’s (@the.beautiful.gods) story: There are things no one tells you after receiving a diagnosis. No one could have possibly prepared you for what you’re about to go through. This was not your fault. Feel the…
Photo courtesy of Connor Shanta Day 19 of 30 This is Connor Shanta’s (@bigmanshanta) story: I live with facioscapulohumeral muscular dystrophy (FSHD). This disease affects the strength of all my muscles but specifically the face, scapular, and arms. I use a power wheelchair to get around. I…
Photo courtesy of Brad Miller Day 18 of 30 This is Brad Miller’s (@MyBeckersStory) story: Hi, my name is Brad, author of the My Beckers Story blog, and I’m in my mid-40s living with Becker muscular dystrophy. Over the last few years, I have…
Photo courtesy of Andy Rusch Day 17 of 30 This is Andy Rusch’s (@wildernessandwolf) story: As someone with Becker muscular dystrophy, I have difficulty with stairs, inclines, and falling. I now have much more difficulty than I used to have. As I’ve grown older, I’ve been transitioning…
Photo courtesy of Lisa D’Andrea Day 16 of 30 This is Lisa D’Andrea’s (@burgiesgirl) story: Six decades of living with Bethlem myopathy have taught me to doggedly pursue the things that make me happy. Being mobility-impaired has made me an expert in finding fun in the things…
Photo courtesy of Adeel Rizvi Day 15 of 30 This is Adeel Rizvi’s story: Each of us is different and unique, and that’s a good thing. My philosophy on life is about recognizing that I am who the other is not. We must appreciate all that we have and…
Photo courtesy of Dominic Marabello Day 14 of 30 This is Dominic Marabello’s (@marabellofitness) story: When I was a teenager, I noticed that other boys my age were beginning to grow muscle while my thin frame remained the same. As I entered my sophomore year of high school, I…
Photo courtesy of Evi D. Day 13 of 30 This is Evi D.’s story: Hi! I’m Evi, 33 years old, and living in Belgium. I have lived with FSHD since I was a kid. It progressed slowly and for a long time, only my facial muscles were affected.
Photo courtesy of Sarah Bennett Day 12 of 30 This is Sarah Bennett’s (@muscle_dystrophy_mom) story: It’s tough to choose just one subject of significant importance to me because of my many different experiences living with muscular dystrophy, but I have decided to focus on mental health. Since…
Photo courtesy of Moira Matthews Day 11 of 30 This is Moira Matthews’ story: My name is Moira Matthews. I am a certified occupational therapy assistant working in Wilmington, North Carolina, with Genesis Rehab Services, providing mobile outpatient services called Vitality to You. I am a lover of…
Recent Posts
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- MDA 2026: Sevasemten halts functional decline in Becker trial
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