30 Days of MD: My Typical Teen’s Journey With Duchenne
Photo courtesy of Sarah Lacey Day 20 of 30 This is Sarah Lacey’s story: My son Sam is 17 years old and has Duchenne muscular dystrophy (DMD). He was diagnosed when he…
30 Days of Muscular Dystrophy
Muscular Dystrophy News Today’s 30 Days of MD campaign is publishing one story per day from someone who has been affected by the disease for MD Awareness Month in September. Read the full series here, and follow us on Facebook and Instagram for more stories like this, using the hashtag #30DaysofMD.
September 30, 2021
by
Bionews Staff
30 Days of MD: The Things People Don’t Tell You
Photo courtesy of Zee Zelinski Day 30 of 30 This is Zee Zelinski’s (@the.beautiful.gods) story: There are things no one tells you after receiving a diagnosis. No one could have possibly…
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September 19, 2021
by Bionews Staff
30 Days of MD: Working at the Y Has Been Incredibly Rewarding
Photo courtesy of Connor Shanta Day 19 of 30 This is Connor Shanta’s (@bigmanshanta) story: I live with facioscapulohumeral muscular dystrophy (FSHD). This disease affects the strength of all my muscles…
September 18, 2021
by Bionews Staff
30 Days of MD: Learning the Importance of Planning Ahead
Photo courtesy of Brad Miller Day 18 of 30 This is Brad Miller’s (@MyBeckersStory) story: Hi, my name is Brad, author of the My Beckers Story blog, and I’m…
September 17, 2021
by Bionews Staff
30 Days of MD: Transitioning From Invisible to Visible Disability
Photo courtesy of Andy Rusch Day 17 of 30 This is Andy Rusch’s (@wildernessandwolf) story: As someone with Becker muscular dystrophy, I have difficulty with stairs, inclines, and falling. I now…
September 16, 2021
by Bionews Staff
30 Days of MD: Baking Sourdough Bread Is My Jam
Photo courtesy of Lisa D’Andrea Day 16 of 30 This is Lisa D’Andrea’s (@burgiesgirl) story: Six decades of living with Bethlem myopathy have taught me to doggedly pursue the things that…
September 15, 2021
by Bionews Staff
30 Days of MD: Life Lessons I’ve Learned Along My Journey
Photo courtesy of Adeel Rizvi Day 15 of 30 This is Adeel Rizvi’s story: Each of us is different and unique, and that’s a good thing. My philosophy on life is about recognizing…
September 14, 2021
by Bionews Staff
30 Days of MD: Fitness Gave Me the Strength to Carry On
Photo courtesy of Dominic Marabello Day 14 of 30 This is Dominic Marabello’s (@marabellofitness) story: When I was a teenager, I noticed that other boys my age were beginning to grow muscle while…
September 13, 2021
by Bionews Staff
30 Days of MD: Learning to Accept My Disability
Photo courtesy of Evi D. Day 13 of 30 This is Evi D.’s story: Hi! I’m Evi, 33 years old, and living in Belgium. I have lived with FSHD since I was…
September 12, 2021
by Bionews Staff
30 Days of MD: Be Kind to Yourself for Your Mental Health’s Sake
Photo courtesy of Sarah Bennett Day 12 of 30 This is Sarah Bennett’s (@muscle_dystrophy_mom) story: It’s tough to choose just one subject of significant importance to me because of my many…
September 11, 2021
by Bionews Staff
30 Days of MD: Occupational Therapy’s All About Teamwork
Photo courtesy of Moira Matthews Day 11 of 30 This is Moira Matthews’ story: My name is Moira Matthews. I am a certified occupational therapy assistant working in Wilmington, North Carolina, with Genesis…
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