30 Days of MD: My Typical Teen’s Journey With Duchenne
Photo courtesy of Sarah Lacey Day 20 of 30 This is Sarah Lacey’s story: My son Sam is 17 years old and has Duchenne muscular dystrophy (DMD). He was diagnosed when he was 5 and needed to…
30 Days of Muscular Dystrophy
30 Days of MD: The Things People Don’t Tell You
Photo courtesy of Zee Zelinski Day 30 of 30 This is Zee Zelinski’s (@the.beautiful.gods) story: There are things no one tells you after receiving a diagnosis. No one could have possibly prepared you for what you’re…
Read more30 Days of MD: Working at the Y Has Been Incredibly Rewarding
Photo courtesy of Connor Shanta Day 19 of 30 This is Connor Shanta’s (@bigmanshanta) story: I live with facioscapulohumeral muscular dystrophy (FSHD). This disease affects the strength of all my muscles but specifically the face, scapular,…
30 Days of MD: Learning the Importance of Planning Ahead
Photo courtesy of Brad Miller Day 18 of 30 This is Brad Miller’s (@MyBeckersStory) story: Hi, my name is Brad, author of the My Beckers Story blog, and I’m in my mid-40s living with…
30 Days of MD: Transitioning From Invisible to Visible Disability
Photo courtesy of Andy Rusch Day 17 of 30 This is Andy Rusch’s (@wildernessandwolf) story: As someone with Becker muscular dystrophy, I have difficulty with stairs, inclines, and falling. I now have much more difficulty than…
30 Days of MD: Baking Sourdough Bread Is My Jam
Photo courtesy of Lisa D’Andrea Day 16 of 30 This is Lisa D’Andrea’s (@burgiesgirl) story: Six decades of living with Bethlem myopathy have taught me to doggedly pursue the things that make me happy. Being mobility-impaired…
30 Days of MD: Life Lessons I’ve Learned Along My Journey
Photo courtesy of Adeel Rizvi Day 15 of 30 This is Adeel Rizvi’s story: Each of us is different and unique, and that’s a good thing. My philosophy on life is about recognizing that I am who the…
30 Days of MD: Fitness Gave Me the Strength to Carry On
Photo courtesy of Dominic Marabello Day 14 of 30 This is Dominic Marabello’s (@marabellofitness) story: When I was a teenager, I noticed that other boys my age were beginning to grow muscle while my thin frame remained the…
30 Days of MD: Learning to Accept My Disability
Photo courtesy of Evi D. Day 13 of 30 This is Evi D.’s story: Hi! I’m Evi, 33 years old, and living in Belgium. I have lived with FSHD since I was a kid. It progressed slowly…
30 Days of MD: Be Kind to Yourself for Your Mental Health’s Sake
Photo courtesy of Sarah Bennett Day 12 of 30 This is Sarah Bennett’s (@muscle_dystrophy_mom) story: It’s tough to choose just one subject of significant importance to me because of my many different experiences living with muscular…
30 Days of MD: Occupational Therapy’s All About Teamwork
Photo courtesy of Moira Matthews Day 11 of 30 This is Moira Matthews’ story: My name is Moira Matthews. I am a certified occupational therapy assistant working in Wilmington, North Carolina, with Genesis Rehab Services, providing mobile outpatient…
