Photo courtesy of Zee Zelinski Day 30 of 30 This is Zee Zelinski’s (@the.beautiful.gods) story: There are things no one tells you after receiving a diagnosis. No one could have possibly prepared you for what you’re…
Read morePhoto courtesy of Melissa Hadel Day 10 of 30 This is Melissa Hadel’s (@duchennewontstopusmd) story: My son, Brodie, doesn’t know his father. He loves his father and hopes he’s doing well, but they haven’t seen each other in…
Photo courtesy of Renée White Day 9 of 30 This is Joseph White’s (@whiteriverartstudio) story: My name is Joseph. I was diagnosed with Becker muscular dystrophy when I was 9 years old. I’ve had it all…
Photo courtesy of Joe Jamison Day 8 of 30 This is Joe Jamison’s (@visitablecertification) story: My name is Joe Jamison, and my father has used a wheelchair my entire life. I grew up experiencing physical and attitudinal…
Photo courtesy of Kristina Kelly Day 7 of 30 This is Kristina Kelly’s (@littleenginesm) story: In 2009, I was offered a role as a healthcare coordinator at the Muscular Dystrophy Association (MDA). It’s likely that I got…
Photo courtesy of Hawken Miller Day 6 of 30 This is Hawken Miller’s story: The Washington Post newsroom in the summer of 2019 was surreal. I had started writing for my high school newspaper, “The Bolt,” and now,…
Photo courtesy of Viola Dwyer Day 5 of 30 This is Viola Dwyer’s story: It’s taken me five years of marriage to realize that ours is not like an average person’s marriage. I have spinal muscular atrophy…
Photo courtesy of Larry Liptak Day 4 of 30 This is Larry Liptak’s story: “Daddy, I can’t raise my left arm.” Those words sent us on an eight-month odyssey to orthopedic doctors and neurologists looking for the cause…
Photo courtesy of Johanna Murrell Day 3 of 30 This is Johanna Murrell’s story: My name is Johanna Murrell, and I’m a physical therapist. My major area of expertise is geriatrics and Parkinson’s disease, but I…
Photo courtesy of Matt DeEmilio Day 2 of 30 This is Matt DeEmilio’s story: My name is Matt DeEmilio. I’m 27 years old, and I am the coordinator for disability support services at Coastal Carolina Community College in…
Photo courtesy of Ross Hovey Day 1 of 30 This is Ross Hovey’s (@thesmartchap_rosshovey) story: Would I have preferred a life without disability? The simple answer to this question is “Yes.” But do I grudge having spinal muscular…
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