Advocacy Partners

We are honored to partner with nonprofit advocacy organizations to amplify their missions, share helpful resources, and ensure patients and families have access to information that supports everyday decision-making. The information featured below was provided by our advocacy partners as part of this collaboration.

Cure CMD logo

Cure CMD’s mission is to advance research toward treatments for the congenital muscular dystrophies and empower those living with CMD through engagement and support of our community.

CureDuchenne logo

CureDuchenne is a global leader in research, patient care and innovation for improving and extending the lives of those with Duchenne muscular dystrophy.

Muscular Dystrophy Association logo

Muscular Dystrophy Association (MDA) is the #1 voluntary health organization in the United States for people living with muscular dystrophy, ALS, and over 300 related neuromuscular conditions.