Advocacy Partner: Cure CMD
About Cure CMD
Cure CMD’s mission is to advance research toward treatments for the congenital muscular dystrophies and empower those living with CMD through engagement and support of our community.
Check out this YouTube video about “The Tenacity of Hope: Making an Impact for the CMD Community”
Contact: Rachel Alvarez – Executive Director
Phone: (562) 444-5656
Email:Â [email protected]
Upcoming events
Scientific & Family (SciFam) Conference
201 S Christopher Columbus Bl
Philadelphia
PA
United States
About Advocacy Partners
The information above is provided by our partner. Learn more about our advocacy partners here.
Recent Posts
- On a rough day, insight into my sons’ life with DMD, wheelchairs
- Focus of NORD study: Rare disease community’s lived experiences
- My disease progression feels like barreling down a hill with no brakes
- AB-1003 trial for LGMD proceeds after positive recommendation
- Living with muscular dystrophy, from the perspective of 4 decades