Author Archives: Adeel Rizvi

Growing Up With Muscular Dystrophy

Welcome back to “Hidden Truths.” Over the past two weeks, I’ve had several meaningful discussions about what it means to have a neuromuscular disorder. Accordingly, this week I wanted to get a bit more personal and answer a question brought up by a friend: “How did it feel growing…

Some Life Lessons to Remember as I Start a New Chapter

Welcome back to “Hidden Truths,” a column where I seek to describe and express my feelings about my diagnosis of limb-girdle muscular dystrophy. This week, I originally wanted to continue the discussion about questioning everything about my diagnosis and care management, which I discussed last week. However, because…

Question Everything: How to Ask the Right Questions

As I’ve described in my previous columns, knowledge is power. I feel very fortunate to have received my diagnosis of limb-girdle muscular dystrophy when I did. I was beginning physical therapy school and had just come to appreciate the power of questioning and research. That said, the topic of…

What Do You Know? Exploring the Questions We Should Ask

I wanted to expand on my last column by delving into the types of questions we should ask when presented with a new ailment, such as muscular dystrophy. I’d like to start with an anonymous quote: “It ain’t what people don’t know that hurts them, it’s what they know…

To Care Is to Share (Knowledge)

This week, I wanted to visit the reason I started writing this column. However, to describe that rationale, I need to revisit the moments soon after I received my diagnosis. I was diagnosed with limb-girdle muscular dystrophy (LGMD) in the late 2000s. I remember my primary physician calling…

The Effects of Guilt on My Body and Mind

Welcome back to “Hidden Truths.” This week I wanted to move away from the style of my first and second columns and discuss how one of the most basic emotions relates to muscular dystrophy (MD) and other chronic illnesses. Guilt occurs when a person feels regret or shame in response…