One of my favorite early-summer memories is from when my sons Max and Rowen were younger. Both lovely little boys…
Betty Vertin
Betty Vertin is a mother and writer living in rural Hastings, Nebraska, with her husband and seven children. Betty is a caregiver to three sons, Max, Rowen, and Charlie. Her oldest was diagnosed with Duchenne muscular dystrophy in 2010 at 4 years old. The other boys were diagnosed with the same in the following year. Although Duchenne occasionally crashes the party, it has not kept her large family from celebrating and enjoying life. She writes her column in hopes of sharing her family’s experiences with others on a similar journey.
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Articles by Betty Vertin
There is joy after a diagnosis of Duchenne muscular dystrophy (DMD). There is joy after the loss of…
When I stopped working at a job away from home in 2007, I never imagined it would be a permanent…
I forgot how scary hope can be. There was a time, a few short months, when I realized I was…
“The stages of Duchenne.” I remember seeing this heading on many of the websites I obsessively read when I learned…
I’m a small-town girl. I love that I can get from one end of my hometown in rural Nebraska to…
Note: This column describes the author’s sons’ experiences with a trial dose of Translarna (ataluren) in the U.S. Not everyone…
How does Duchenne muscular dystrophy (DMD) affect me as a mom? Am I numb? Have I accepted it? Has…
It was almost midnight on a Friday night, and for hours, my husband, Jason, and I hadn’t seen or heard…
Siblings are the greatest thing I have given my children. They are built-in friends who share the earliest memories,…