Note: This column describes the author’s sons’ experiences with a trial dose of Translarna (ataluren) in the U.S. Not everyone…
Betty Vertin
Betty Vertin is a mother and writer living in rural Hastings, Nebraska, with her husband and seven children. Betty is a caregiver to three sons, Max, Rowen, and Charlie. Her oldest was diagnosed with Duchenne muscular dystrophy in 2010 at 4 years old. The other boys were diagnosed with the same in the following year. Although Duchenne occasionally crashes the party, it has not kept her large family from celebrating and enjoying life. She writes her column in hopes of sharing her family’s experiences with others on a similar journey.
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Articles by Betty Vertin
How does Duchenne muscular dystrophy (DMD) affect me as a mom? Am I numb? Have I accepted it? Has…
It was almost midnight on a Friday night, and for hours, my husband, Jason, and I hadn’t seen or heard…
Siblings are the greatest thing I have given my children. They are built-in friends who share the earliest memories,…
I’m looking out our patio doors at our backyard. I can hear the not-so-gentle Nebraska gales blowing around the wind…
It’s no secret that I love the holidays. If you look through my past columns, you’ll find some about…
I always assumed my three sons with Duchenne muscular dystrophy (DMD) wouldn’t get to experience college. I knew…
My oldest son, Max, is graduating from high school this year. I know I’ve shared that repeatedly, but the…
I was mad at my husband, Jason, for spending the night in the recliner. He’d been there because he’d been…
I drove my oldest son, Max, who is 17, to his second college visit this week. As we veered…