My family has been on the Duchenne muscular dystrophy (DMD) journey for almost 12 years. During that time, I’ve quietly…
Articles by Betty Vertin
Celebrate? Yes, we do. There was a time when I didn’t think celebrating and Duchenne muscular dystrophy could coexist. I…
During Mass on Sunday, the priest talked about an aspect of faith that acts as an infusion for the soul.
I’ve had a conversation with my son Rowen, 13, that we continue to revisit, and I feel like it’s something…
I set aside time every week just for me. Every Monday for an hour, I sit in a small chapel…
This column is my love letter to the cough assist machine. I love the assistive device and what it…
My family has had a hectic week. It started out lovely; the entire family, all nine of us, spent a…
The adjective “rare” refers to an event, situation, or condition not occurring very often, not found in large numbers, and…
My husband and I have four sons, but I spend most of my energy in this column writing about the…
Living with a rare disease like Duchenne muscular dystrophy is more than doctors’ appointments, medicines, and wheelchairs. It affects every…