The adjective “rare” refers to an event, situation, or condition not occurring very often, not found in large numbers, and…
Articles by Betty Vertin
My husband and I have four sons, but I spend most of my energy in this column writing about the…
Living with a rare disease like Duchenne muscular dystrophy is more than doctors’ appointments, medicines, and wheelchairs. It affects every…
January is birthday month at our house. We have four birthdays in January. That’s almost half of our family celebrating…
My family stands out. I’ve shared that with you before. The sheer number of children is enough to make…
My marriage is one of the most important things in my life. Shortly after my sons were diagnosed with Duchenne…
Before COVID-19, I used to travel a lot and participate in several in-person meetings and conferences related to Duchenne muscular…
In a previous column, I mentioned that my family would be skiing in Winter Park, Colorado, over Christmas break.
Being the mother and caregiver of three sons living with Duchenne muscular dystrophy brings a lot of stress. Much of…
I often see posts in Facebook groups and other places asking about what holiday gift ideas people might have…