I’ve had a conversation with my son Rowen, 13, that we continue to revisit, and I feel like it’s something…
Betty Vertin
Betty Vertin is a mother and writer living in rural Hastings, Nebraska, with her husband and seven children. Betty is a caregiver to three sons, Max, Rowen, and Charlie. Her oldest was diagnosed with Duchenne muscular dystrophy in 2010 at 4 years old. The other boys were diagnosed with the same in the following year. Although Duchenne occasionally crashes the party, it has not kept her large family from celebrating and enjoying life. She writes her column in hopes of sharing her family’s experiences with others on a similar journey.
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Articles by Betty Vertin
I set aside time every week just for me. Every Monday for an hour, I sit in a small chapel…
This column is my love letter to the cough assist machine. I love the assistive device and what it…
My family has had a hectic week. It started out lovely; the entire family, all nine of us, spent a…
Who Are the Rarest of the Rare?
The adjective “rare” refers to an event, situation, or condition not occurring very often, not found in large numbers, and…
My husband and I have four sons, but I spend most of my energy in this column writing about the…
Living with a rare disease like Duchenne muscular dystrophy is more than doctors’ appointments, medicines, and wheelchairs. It affects every…
January is birthday month at our house. We have four birthdays in January. That’s almost half of our family celebrating…
My family stands out. I’ve shared that with you before. The sheer number of children is enough to make…
My marriage is one of the most important things in my life. Shortly after my sons were diagnosed with Duchenne…