This patient advocate's journey is full of emotional highs and lows as she navigates raising three sons with Duchenne muscular dystrophy. Despite the uncertainty, every victory, no matter how small, is a celebration of resilience and hope.
Betty Vertin
Betty Vertin is a mother and writer living in rural Hastings, Nebraska, with her husband and seven children. Betty is a caregiver to three sons, Max, Rowen, and Charlie. Her oldest was diagnosed with Duchenne muscular dystrophy in 2010 at 4 years old. The other boys were diagnosed with the same in the following year. Although Duchenne occasionally crashes the party, it has not kept her large family from celebrating and enjoying life. She writes her column in hopes of sharing her family’s experiences with others on a similar journey.
At Bionews we’re committed to providing the most accurate, relevant, and up-to-date reporting for our patient communities. Our goal is to ensure that everyone has access to disease-specific information that is both trustworthy and easy to understand. You can read more about our editorial policy here.
Articles by Betty Vertin
I’m more than a caregiver, but it took a recent life change for me to realize that. I’m a…
I think about things deeply, rolling ideas around in my head until they make sense. My creative side, the writer,…
Life feels busy, which is no surprise to me. My husband, Jason, and I share seven children: Lexi, 23; Max,…
“Kidney stones!” my 13-year-old son, Charlie, exclaimed when I asked him what I should write about this week. My husband,…
I have three teenage sons — Max, 18, Rowen, 15, and Charlie, 13 — who have Duchenne muscular dystrophy (DMD).
The seasons are changing in central Nebraska. The leaves have turned yellow and orange, a beautiful contrast littered across the…
I’m a mom to seven children: Lexi, 23; Max, 18; Chance, 17; Rowen, 15; Charlie, 13; Mary, 10; and Callie,…
I sat in the front row of the football stadium, watching my second-oldest son, Chance, 17, play football. It’s his…
What’s a typical week as a caregiver of three sons with Duchenne muscular dystrophy (DMD) like? As a primary…