Posts by: Hawken Miller

Hawken Miller

Hawken is a recent graduate from the University of Southern California and a young journalist with Duchenne muscular dystrophy. He has previously worked for the Washington Post, Sacramento Bee, KTLA 5 News and at USC Annenberg Media. When not writing columns, he’s reporting on rare disease-related news for the publisher of this website, BioNews.

November 23, 2020November 19, 2020

Expressing Our Negative Emotions to Find Positive Ones

columns, Hawk's-Eye View - a Column by Hawken Miller

I always hope to impart a positive message to my readers and exude joy in life whenever possible, but I also know it’s OK to be upset, even angry, ... Read more

November 18, 2020November 18, 2020

Latest NORD Webinar Offers Insights on Starting Nonprofit, Patient Registry

News, syndicated

Leaders in the U.S. rare disease community came together recently for a webinar to present helpful information on how to start a nonprofit and patient registry. They shared about ... Read more

November 17, 2020November 17, 2020

Q&A: Meet the Muscular Dystrophy Association’s New CEO and President

News

The Muscular Dystrophy Association (MDA) announced last week it had selected former MDA vice chairman of the board Donald Wood, PhD, as the new president and CEO of the ... Read more

November 9, 2020November 5, 2020

How I’m Getting Out of My 2020 Funk

columns, Hawk's-Eye View - a Column by Hawken Miller

If 2020 hasn’t been a challenging year for you, that’s great news. But for me, like many others, this year has been a lesson in overcoming adversity, whether it’s ... Read more

October 20, 2020October 22, 2020

MDA Telethon Returning, Going Virtual With Host Kevin Hart

News

The Muscular Dystrophy Association Telethon returns this month after a six-year absence, with actor Kevin Hart hosting the virtual event. The two-hour MDA Kevin Hart Kids Telethon, set for ... Read more

October 19, 2020October 15, 2020

What I Learned About Life From My Dog

columns, Hawk's-Eye View - a Column by Hawken Miller

On Sept. 29, part of my life was lost. My dog, Gus, who had been a staple of the Miller family household for 13 years, left the world. To ... Read more

October 5, 2020October 1, 2020

Removing Barriers to Employment for People With Disabilities

columns, Hawk's-Eye View - a Column by Hawken Miller

As a journalist and person with Duchenne muscular dystrophy, I have a dual purpose. I want to inform people and hold those in power accountable. I also want to ... Read more

September 28, 2020September 28, 2020

Efforts Continue Beyond Awareness Month to Expand Newborn Screening Panels in US

News, syndicated

It took one year for Dona Krystosek to get a diagnosis for her son, Levi, after he was born. The family received three misdiagnoses of fatal diseases until they ... Read more

September 21, 2020September 17, 2020

The Value of Having Friends With the Same Disease

columns, Hawk's-Eye View - a Column by Hawken Miller

Over the last couple of years, I’ve had opportunities to meet and befriend more adults with Duchenne muscular dystrophy. Whether we’ve found one another through CureDuchenne events or a ... Read more

September 14, 2020September 10, 2020

Overcoming the Idea of Being a Burden

columns, Hawk's-Eye View - a Column by Hawken Miller

As I’ve started relying more on people for things I used to do on my own, it’s become easier to ask for help without feeling like a burden. This ... Read more