Posts by: Hawken Miller

Hawken Miller

Hawken Miller is a recent graduate from the University of Southern California and an aspiring young journalist. He has previously worked for the Sacramento Bee, KTLA 5 News and at USC Annenberg Media.

April 6, 2020April 2, 2020

Self-quarantine Has Leveled the Social Playing Field

columns, Hawk's-Eye View - a Column by Hawken Miller

I’ve always sought silver linings, including in this season of social distancing. Many people now exclusively use technology to communicate with family, friends, and co-workers to reduce viral spread. ... Read more

March 26, 2020March 26, 2020

NORD Partners with ‘Sing Me a Story’ for July 18–20 Living Rare Forum

News

The Living Rare, Living Stronger Patient and Family Forum, originally set for May 14–16 in Cleveland, Ohio, has been postponed until July 18–20 because of the coronavirus disease COVID-19 pandemic. ... Read more

March 16, 2020March 12, 2020

Celebrating My First Year of Writing Columns

columns, Hawk's-Eye View - a Column by Hawken Miller

This week, I celebrate my one-year anniversary of writing columns for BioNews Services. A lot has happened in that year: I graduated from college, interned at The Washington Post, ... Read more

March 4, 2020March 4, 2020

FSHD Advocate to Speak at FDA Drug Development Meeting in April

News

When Shawn Welch was diagnosed in 1979 with facioscapulohumeral muscular dystrophy (FSHD), his doctor at the University of Connecticut John Dempsey Hospital told him he’d probably die before his ... Read more

March 2, 2020February 27, 2020

Life Isn’t Fair, but I Can Make the Best of It

columns, Hawk's-Eye View - a Column by Hawken Miller

If we lived in a fair world, Duchenne muscular dystrophy would not exist. Unfortunately, life isn’t fair, and I was diagnosed with the muscle-wasting disease 18 years ago. Even ... Read more

February 28, 2020February 28, 2020

Advice on Starting Nonprofit Groups for Rare and Other Diseases Focus of NORD Webinar

News

Starting a 501(c)(3) tax-exempt nonprofit isn’t easy, but the National Organization for Rare Disorders gave a few tips for those looking to begin the complex process in its Feb. ... Read more

February 17, 2020February 13, 2020

As Adults with DMD, We Have a Responsibility to Mentor Younger Generations

columns, Hawk's-Eye View - a Column by Hawken Miller

Adults with Duchenne muscular dystrophy (DMD) should help younger generations through the difficult parts of growing up with a rare muscular disease. They need someone in a similar situation ... Read more

February 11, 2020February 11, 2020

FDA Efforts to Bring Patients into Treatment Decisions Focus of NORD Webinar

News

The U.S. Food and Drug Administration (FDA), a vast government bureaucracy, employs about 17,500 people and had a budget of $5.7 billion in 2019. Yet even with its enormous ... Read more

February 3, 2020January 30, 2020

Developing My Talents Has Helped Me to Thrive

columns, Hawk's-Eye View - a Column by Hawken Miller

Life with Duchenne muscular dystrophy is far from predictable. We can’t foresee how our bodies will change. When I turned 18 (I’m 23 now), I didn’t know that five years ... Read more

January 20, 2020January 16, 2020

A Positive Attitude Makes a World of Difference When Coping with Duchenne

columns, Hawk's-Eye View - a Column by Hawken Miller

The other day, I was sitting in Haute Cakes Caffe chowing down on a carnitas breakfast burrito, when an older woman sitting next to me said something that took ... Read more

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