Posts by: Hawken Miller

Hawken Miller

Hawken is a recent graduate from the University of Southern California and a young journalist with Duchenne muscular dystrophy. He has previously worked for the Washington Post, Sacramento Bee, KTLA 5 News and at USC Annenberg Media. When not writing columns, he’s reporting on rare disease-related news for the publisher of this website, BioNews.

April 5, 2021April 1, 2021

Dungeons and Dragons Helps Me Live Without Duchenne for a Moment

Columns, Hawk's-Eye View - a Column by Hawken Miller

Kriki Cragwalker, a redheaded dwarf from the mountain city of Jagarz Dauk, grasps her enchanted, two-handed greataxe and is circled by a host of ancient green spirits with allegiance to ... Read more

March 30, 2021March 30, 2021

Cost of Rare Diseases in US? Nearly $1 Trillion in 2019, EveryLife Foundation Finds

News, syndicated

As anyone affected by a rare disease knows, treating the illness while trying to go about everyday life is an expensive undertaking. But exactly how expensive — in terms of ... Read more

March 22, 2021March 18, 2021

What Having Duchenne Muscular Dystrophy Feels Like

Columns, Hawk's-Eye View - a Column by Hawken Miller

If you are familiar with the disease Duchenne muscular dystrophy, it’s easy to tell if someone has it. Enlarged calves, a waddling gait, the use of a wheelchair, and in ... Read more

March 8, 2021March 4, 2021

I’m Ready to Go Forward After My 2nd Dose of the COVID-19 Vaccine

Columns, Hawk's-Eye View - a Column by Hawken Miller

On Feb. 19, I received my second dose of the Pfizer COVID-19 vaccine. According to the nurse who gave me the injection and clinical trial results from the biotech company, ... Read more

March 5, 2021March 30, 2021

Pink, Green, Blue and Purple Lights Illuminated World for Rare Disease Day

News

Many diseases have their own awareness color — breast cancer is pink, muscular dystrophy is green, and AIDS is red, for example — but what’s the significance of pink, green, ... Read more

February 26, 2021February 26, 2021

Rare Disease Day ‘Patient Hero’ Raises Awareness Through Fashion

News, syndicated

Diagnosed with sickle cell disease as a 6-month-old, Tristan Lee has faced a lot of challenges over his 37 years of life. But from a young age, he also learned ... Read more

February 22, 2021February 18, 2021

Yes, We Are Rare, but Please Realize We Are Human First

Columns, Hawk's-Eye View - a Column by Hawken Miller

Rare Disease Day, a global push for rare disease awareness, is less than a week away, on Feb. 28. As someone with a rare disease myself, I’ve heard the word ... Read more

February 8, 2021February 4, 2021

It’s Time for Me to Go Outdoors and Take in the Vitamin D

Columns, Hawk's-Eye View - a Column by Hawken Miller

In the last year, it’s been easy for me to coop myself up in my room and spend the entire day without stepping outside once. I’m either afraid of getting ... Read more

January 25, 2021January 21, 2021

Why I’m Taking a Break From Playing Video Games

Columns, Hawk's-Eye View - a Column by Hawken Miller

I’m a self-described gamer, and proud of it, but lately I’ve realized I’ve probably been playing too much. Two weeks ago, during online church services, we talked about fasting, including ... Read more

January 11, 2021January 7, 2021

Why Freelancing Works for My Life With Duchenne

Columns, Hawk's-Eye View - a Column by Hawken Miller

Since my internship at The Washington Post, I’ve done freelance work at outlets ranging from The Forward, a Jewish-focused website, to Dot Esports, and of course, BioNews, the publisher of ... Read more