Part one of a series. Last summer, I was looking through some Bionews Services articles when I came…
Leah Leilani
Leah is a Southern California-based patient writer. She’s been an active member of the muscular dystrophy community since her regional ambassadorship with the MDA beginning at the age of 10 after her diagnosis of a rare neuromuscular disease, mitochondrial myopathy (Mito). Leah advocates for those with disabilities and promotes an understanding of her condition by evoking a positive outlook upon the obstacles she faces. Leah’s work doesn’t just stop at her column: she also doubles as a co-moderator on the MD News Forums. Away from her jobs, Leah is known among family and friends for her artistic creativity and outgoing personality.
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Articles by Leah Leilani
Just eight years ago, a four-hour trip to Disneyland would barely touch me. I’d go on a…
Everyone suffers from insecurity every once in a while. It doesn’t matter whether you’re a man or a…
Whether you or your loved one has a chronic illness, it’s important to prepare for hospital stays. Despite…
Every once in a while, I am asked, “Who are the most influential and inspirational people in your…
Chronic illness can dramatically alter life perspective. If there’s anything I’ve learned from having mitochondrial myopathy, it’s gratitude…
A lot of people think that asking for help is a piece of cake. A walk in the…
Renovating your home for wheelchair accessibility can seem like a daunting task. You would not be wrong. It…
Fitbits aren’t just for able-bodied fitness gurus; they have many more features than just counting footsteps. As I…
Being wheelchair-bound and still stylish can be the ultimate challenge. It’s hard to find that balance between style…