Posts by: Leah Leilani

Leah Leilani

My name is Leah. I'm 20 years old and I was diagnosed at the age of nine with a a rare form of Muscular Dystrophy called Mitochondrial Myopathy. I'm a former MDA Regional Ambassador and have recently started my own blog. My disease affects my energy levels and I can not get through the day without my wheelchair and taking naps.

July 11, 2017July 10, 2017

A Guide to Medical IDs and How to Pick the Right One for You

columns, You, Me and MD - a Column by Leah Leilani

When I was little, I wore a medical ID bracelet because I had asthma. Twelve years later, I recently bought a new one to replace the old one, which ... Read more

June 27, 2017June 26, 2017

Introducing You, Me and MD: Meet Columnist Leah Leilani

columns, You, Me and MD - a Column by Leah Leilani

Hello! My name is Leah, and 12 years ago, I was diagnosed with a rare form of muscular dystrophy called mitochondrial myopathy. If you don’t know, mitochondria are the ... Read more