Posts by: Leah Leilani

Leah Leilani

My name is Leah. I'm 20 years old and I was diagnosed at the age of nine with a a rare form of Muscular Dystrophy called Mitochondrial Myopathy. I'm a former MDA Regional Ambassador and have recently started my own blog. My disease affects my energy levels and I can not get through the day without my wheelchair and taking naps.

December 11, 2018December 7, 2018

Seasonal Cooking with Mito

columns, You, Me and MD - a Column by Leah Leilani

The Christmas season has drifted in, and with it come mouth-watering kitchen smells. It’s time to mix the cookie dough, roll out the pie crust, and stick the turkey ... Read more

December 4, 2018November 30, 2018

Small Ways to Get in the Holiday Spirit

columns, You, Me and MD - a Column by Leah Leilani

The holidays can be a tumultuous time. Advertisements would have us believe that the ups and downs of life take a hiatus for the holiday season. However, many of ... Read more

November 20, 2018November 19, 2018

My Introduction to Medical Marijuana

columns, You, Me and MD - a Column by Leah Leilani

Marijuana use in the United States dates back to the 1600s. Before being introduced as a recreational drug in the early 1900s, hemp, a variety of the cannabis plant, ... Read more

October 30, 2018October 29, 2018

Here’s How I Host Parties While Still Caring for My Body

columns, You, Me and MD - a Column by Leah Leilani

These days it’s more difficult than ever to hang out with my friends. They’re all working hard to pay bills and get through college. It’s rare that we can ... Read more

October 23, 2018October 22, 2018

Making Medication Compliance Easier

columns, You, Me and MD - a Column by Leah Leilani

I feel like the only thing I do is take care of my body. I am constantly weighing the odds of every decision, theorizing risks of negative bodily impacts. ... Read more

October 16, 2018October 15, 2018

Wheelchair-accessible Halloween Happenings

columns, You, Me and MD - a Column by Leah Leilani

Halloween pulls at my heartstrings. I love it so much that even Christmas comes in second. Maybe it’s thanks to all the beautiful fall colors or the excitement of ... Read more

October 9, 2018October 8, 2018

The Simple Act of Opening a Door for Someone

columns, You, Me and MD - a Column by Leah Leilani

Society is an odd concept if you really think about it. It controls us like puppets on a string. As society continues to evolve, it seems to value chivalry ... Read more

September 25, 2018September 21, 2018

Things to Keep in Mind When Choosing a Wheelchair

columns, You, Me and MD - a Column by Leah Leilani

There are many skills to learn if you recently have been diagnosed with a chronic illness. These range from being organized for doctor’s appointments to finding the best mobility ... Read more

September 18, 2018September 17, 2018

A Girl’s Best Friend: Thoughts on Mobility Assistance Dogs

columns, You, Me and MD - a Column by Leah Leilani

One of the best days of my life was when my family and I brought home my dog, Andre. The second my eyes fell on him, I melted into ... Read more

September 11, 2018September 7, 2018

Listening and Surrendering to My Body Isn’t Always Easy

columns, You, Me and MD - a Column by Leah Leilani

Being a healthy able-bodied human being must be nice. Not having to worry about taking medications or planning out your day based on your energy levels. Not having to ... Read more

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