My name is Leah. I'm 20 years old and I was diagnosed at the age of nine with a a rare form of Muscular Dystrophy called Mitochondrial Myopathy. I'm a former MDA Regional Ambassador and have recently started my own blog. My disease affects my energy levels and I can not get through the day without my wheelchair and taking naps.
Initial misdiagnosis is a common experience of those living with chronic illnesses. Many diseases have similar characteristics, and during the process of elimination, patients can receive an incorrect diagnosis. ... Read more
I received my mitochondrial myopathy diagnosis 13 years ago. I became involved with the Muscular Dystrophy Association (MDA) soon afterward. The organization is known for its Labor Day telethons previously ... Read more
Many YouTubers create meaningful content about their lives with disability and chronic illness. By showing what it’s like to live with physical obstacles, they create awareness and inspire others ... Read more
Spoiler alert: This column reveals some plot details of the newly released film “The Upside.” All over the world, members of the disabled community are discussing the recently released movie ... Read more
In this day and age, when we have so much awareness about diversity, it surprises me how judgmental people can still be. It was rare 60 years ago to ... Read more
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