Posts by: Leah Leilani

Leah Leilani

My name is Leah. I'm 20 years old and I was diagnosed at the age of nine with a a rare form of Muscular Dystrophy called Mitochondrial Myopathy. I'm a former MDA Regional Ambassador and have recently started my own blog. My disease affects my energy levels and I can not get through the day without my wheelchair and taking naps.

September 14, 2017September 13, 2017

Tips and Tricks to Stay Positive when You Have a Disability

columns, You, Me and MD - a Column by Leah Leilani

It’s not always easy to be positive with a disability, especially in the beginning. It’s hard to see your friends do things that you can’t. The stares are hard ... Read more

September 5, 2017September 1, 2017

How Technology Improves the Lives of People with Disabilities

columns, You, Me and MD - a Column by Leah Leilani

With technology at our fingertips, being unplugged and off grid can seem like something that exists only in a fiction novel. New smartphones come out each year, cars have built-in ... Read more

August 22, 2017August 22, 2017

Why I Drink Gatorade

columns, You, Me and MD - a Column by Leah Leilani

In 1965, a coach for the University of Florida football team — the Gators — noticed that his players were being affected by heat-related illnesses. The coach then asked ... Read more

August 8, 2017August 8, 2017

My Walk with Faith While Living with MD

columns, You, Me and MD - a Column by Leah Leilani

People are always surprised at how faithful my family is. They think that because of my illness we would automatically throw our faith out the window, or that we would ... Read more

July 11, 2017July 10, 2017

A Guide to Medical IDs and How to Pick the Right One for You

columns, You, Me and MD - a Column by Leah Leilani

When I was little, I wore a medical ID bracelet because I had asthma. Twelve years later, I recently bought a new one to replace the old one, which ... Read more

June 27, 2017June 26, 2017

Introducing You, Me and MD: Meet Columnist Leah Leilani

columns, You, Me and MD - a Column by Leah Leilani

Hello! My name is Leah, and 12 years ago, I was diagnosed with a rare form of muscular dystrophy called mitochondrial myopathy. If you don’t know, mitochondria are the ... Read more