Posts by: Leah Leilani

Leah Leilani

My name is Leah. I'm 20 years old and I was diagnosed at the age of nine with a a rare form of Muscular Dystrophy called Mitochondrial Myopathy. I'm a former MDA Regional Ambassador and have recently started my own blog. My disease affects my energy levels and I can not get through the day without my wheelchair and taking naps.

February 12, 2019February 8, 2019

Tips to Alleviate Symptoms of Constipation

columns, You, Me and MD - a Column by Leah Leilani

Managing one’s health while living with a disability requires much more than regular trips to the doctor and excessive amounts of medications. For those with disabilities, daily life can ... Read more

February 5, 2019February 12, 2019

I Can’t Do Everything, and That’s OK

columns, You, Me and MD - a Column by Leah Leilani

A couple weeks ago, a blogger with mitochondrial myopathy posted an interesting piece of advice in her Instagram story: “Instead of telling disabled kids ‘You can do anything you want ... Read more

January 29, 2019January 28, 2019

Finding the Perfect Wheelchair Blanket

columns, You, Me and MD - a Column by Leah Leilani

Many YouTubers create meaningful content about their lives with disability and chronic illness. By showing what it’s like to live with physical obstacles, they create awareness and inspire others ... Read more

January 22, 2019January 28, 2019

Seeing Both Sides of ‘The Upside’

columns, You, Me and MD - a Column by Leah Leilani

Spoiler alert: This column reveals some plot details of the newly released film “The Upside.” All over the world, members of the disabled community are discussing the recently released movie ... Read more

January 15, 2019January 14, 2019

I’ve Learned How to Deal with Judgment About My Disease

columns, You, Me and MD - a Column by Leah Leilani

In this day and age, when we have so much awareness about diversity, it surprises me how judgmental people can still be. It was rare 60 years ago to ... Read more

December 18, 2018December 17, 2018

Here’s How I Decorated My Wheelchair This Christmas

columns, You, Me and MD - a Column by Leah Leilani

In my family, almost every holiday deserves decorations. Even Valentine’s Day is celebrated, with heart stickers on our bathroom mirrors and red-heart garland strewn about the house — inspired ... Read more

December 11, 2018December 7, 2018

Seasonal Cooking with Mito

columns, You, Me and MD - a Column by Leah Leilani

The Christmas season has drifted in, and with it come mouth-watering kitchen smells. It’s time to mix the cookie dough, roll out the pie crust, and stick the turkey ... Read more

December 4, 2018November 30, 2018

Small Ways to Get in the Holiday Spirit

columns, You, Me and MD - a Column by Leah Leilani

The holidays can be a tumultuous time. Advertisements would have us believe that the ups and downs of life take a hiatus for the holiday season. However, many of ... Read more

November 20, 2018February 14, 2019

My Introduction to Medical Marijuana

columns, You, Me and MD - a Column by Leah Leilani

Marijuana use in the United States dates back to the 1600s. Before being introduced as a recreational drug in the early 1900s, hemp, a variety of the cannabis plant, ... Read more

October 30, 2018October 29, 2018

Here’s How I Host Parties While Still Caring for My Body

columns, You, Me and MD - a Column by Leah Leilani

These days it’s more difficult than ever to hang out with my friends. They’re all working hard to pay bills and get through college. It’s rare that we can ... Read more

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