Last week’s column, “Uniting to Effect Positive Change,” focused on the bigger picture of advocacy. This form of advocating is about a larger movement and changing the society we live in. I have heard from many people wanting to get more involved. I cherish this because the time is…
I promised you that Sammy would be back. He came to this column on April 18 (see: “True Accessibility for All: No Roadblocks, Please“), and because he is my alter ego, I figured we’d be talking again at some point. The last time Sammy caught up with me, I…
Many people love to travel. The issue of wheelchair accessibility on airplanes is important. Just as important for those of us who don’t use a wheelchair but are looking for better ways to get around is how we augment the strength we have with assistive technology.
Research and clinical trials Science is closer than ever before to finding treatments and cures for many rare illnesses. An important topic that I’d like to address is the process of research and clinical trials. This is an area in which we can all help…
One of the greatest human needs is to feel that we belong. Most of us, even the introverted ones among us, seek to have a group of people with whom we feel a connection. Family is usually the first community that gives us this sense of belonging, a group in…
First, a thank-you As I begin my second month as a columnist at Muscular Dystrophy News Today, I’m excited to be hearing from you about the columns. I’m on Twitter (@ralphyaniz) and always want to delve deeper. I also love some of the ideas I’m getting. As I…
Whenever the topic of accessibility comes up, you can bet there’ll be great passion. We all want the right to access and partake in everything beautiful in life, yet so much of the world is unreachable to those of us with disabilities. In this column, I introduce my alter…
Come on! Is it essential to set goals in life? Do we need them? How can those of us who deal with a muscle-wasting illness push ourselves appropriately and live life to the fullest extent possible? I can tell you that it’s easy to fall into inaction if we…
Welcome to my first column at Muscular Dystrophy News Today. Let me tell you a little about myself. I turned 60 in January and have been dealing with muscle loss symptoms since I was 47. When I first noticed the symptoms, my form of muscular dystrophy had not…
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