Author Archives: Wendy Henderson

3 People Who Have Something to Say About Muscular Dystrophy

These videos show how people living with muscular dystrophy (MD) can smash the stereotypes associated with having a disability, and lead rich and full lives. First up is 35-year-old Michael Klinkhamer, who has Becker muscular dystrophy. In this video shared by Story Hive, Michael explains that he spends all his…

6 of the Best Apps for Chronic Illness Management

Managing a chronic illness can be difficult. There are many different medications to take (often at different times), appointments to remember, symptoms to keep track of, and lots of information to absorb. Thankfully, living in a digital age means that there are numerous mobile apps that can help you manage…

Graduate With Muscular Dystrophy Gets His Dream Disney Trip

According to The Morning Call, 23-year-old DeSales University graduate Derek Szena desperately wanted to visit Disney World, but the cost of getting there and taking the nursing staff that he needs with him would cost more than $15,000. MORE: Find out what it’s like to live with a…

Teen With MD Sets Great Example On and Off the Basketball Court

Austin Pinkerton may have muscular dystrophy but that hasn’t stopped him from enjoying his favorite sport, basketball. According to WHNT19 News, the senior at Hazel Green High School is the manager of the school’s varsity boys basketball team, the Trojans. MORE: High school teen Bryan Arnold from Anchorage…

3-Year-Old MD Patient Completes Half-Marathon With His Dad

Most 3-year-olds only get to watch marathons from the sidelines or on television, but not Levi Gagner. The Rare Disease Report revealed that Levi, along with his dad Kyle, completed the Rock ‘n’ Roll half marathon earlier this year. The Pheonix, Arizona event is the third race the two have competed…

5 Tips for Emotionally Coping With Duchenne Muscular Dystrophy

As boys with Duchenne muscular dystrophy get older, their disease progresses and it’s likely that their emotional response to the disease will change over time. It’s perfectly natural for Duchenne MD patients to experience frustration, anger, self-pity and anxiety regarding their condition, but there are ways that you can help…

Crutches Redesigned for the 21st Century

Crutches have long been a cumbersome device that designers haven’t thought twice about — until now. As you can see in this video from max, crutches have finally been given a much-needed makeover. MORE: Wearable robot hand could give muscular dystrophy patients better hand control Instead…

Animated Film Helps Explain Duchenne Muscular Dystrophy to Kids

In this animated video from the Parent Project Muscular Dystrophy, Tim and Moby talk about Duchenne muscular dystrophy in a way that children of all ages can understand. MORE: Five tips for emotionally coping with Duchenne muscular dystrophy The cartoon duo explains that Duchenne muscular dystrophy (DMD) affects approximately…