Wendy Henderson,  —

Deflazacort (Emflaza) is a drug used in the treatment of Duchenne muscular dystrophy (DMD). It’s generally given to patients five years and older and is a type of corticosteroid precursor which acts as an immunosuppressant and anti-inflammatory medication. Read our five tips for emotionally coping with Duchenne muscular dystrophy.  Conducted in…

In this animated video from the Parent Project Muscular Dystrophy, Tim and Moby talk about Duchenne muscular dystrophy in a way that children of all ages can understand. The cartoon duo explains that Duchenne muscular dystrophy (DMD) affects approximately one in 3,500 boys and they are usually diagnosed between the ages…

https://www.youtube.com/watch?v=68YO2eh1bIY YouTuber Ethan Britt takes time out from his usual filmmaking to discuss a subject close to his heart. In this video, the 18-year-old from Raleigh, North Carolina talks about when he was diagnosed with Becker muscular dystrophy (MD). Find out seven ways that Duchenne and Becker muscular…

Having muscular dystrophy (MD) doesn’t mean that you can’t participate in fun events, you just need a little bit of imagination and some help along the way to make it happen. According to a report from the Cairns Post, a 10-year-old boy with muscular dystrophy took part in a…

Researchers have identified a way of changing parts of DNA sequencing to be used as a treatment for genetic diseases. The CRISPR/Cas9 therapy (or clustered regularly interspaced short palindromic repeats) is a new method of genome editing which can be used in the treatment of Duchenne muscular dystrophy. UT Southwestern researcher…

A family from Torrington, Connecticut is taking advantage of the FDA’s temporary approval of the muscular dystrophy drug Exondys 51 (or Eteplirson). In a report from Fox61.com, mom Mel Kelly had joined an MD movement that applied pressure on the FDA to approve the drug. Find out more…

As boys with Duchenne muscular dystrophy get older, their disease progresses and it’s likely that their emotional response to the disease will change over time. It’s perfectly natural for Duchenne MD patients to experience frustration, anger, self-pity and anxiety regarding their condition, but there are ways that you can help…

Austin Pinkerton may have muscular dystrophy but that hasn’t stopped him from enjoying his favorite sport, basketball. According to WHNT19 News, the senior at Hazel Green High School is the manager of the school’s varsity boys basketball team, the Trojans. High school teen Bryan Arnold from Anchorage…

According to The Morning Call, 23-year-old DeSales University graduate Derek Szena desperately wants to visit Disney World, but the cost of getting there and taking the nursing staff that he needs with him would cost more than $15,000. Find out what it’s like to live with a muscle…

Crutches have long been a cumbersome device that designers haven’t thought twice about—until now. As you can see in this video from max, crutches have finally been given a much-needed makeover. Wearable robot hand could give muscular dystrophy patients better hand control. Instead of supporting the…