Wendy Henderson,  —

Muscular dystrophy is a genetic condition that causes muscle weakness and a loss of muscle mass. There is no cure for any type of muscular dystrophy but there are treatments that can help patients manage the symptoms and improve their quality of life. MORE: Watch what happens when children meet a man…

James Baxter-O’Shea and his family from Oberon in New South Wales, Australia were finding it difficult to get around. Their current vehicle was old, full of rust and falling apart. When friends and neighbors heard about their plight, they decided to get together to help out the family, particularly James, who…

Muscular dystrophy (MD) is a progressive disease that causes muscle weakness and loss of muscle mass. There are many different types of muscular dystrophy that affect people differently and range in severity. According to the Mayo Clinic, some of the common complications associated with muscular dystrophy include:…

Coping with a chronic illness is challenging, both physically and emotionally. Often the illness can change the way we look, making us feel self-conscious or embarrassed. This is not helped by people commenting on physical changes like weight gain or loss, or other body or facial changes. MORE: Inspirational young people with muscular…

If you are active on social media and have a chronic illness, you’ve probably come across the term “spoonie.” The word comes from a woman’s explanation of how she has to manage her energy levels each day.  As she was in a cafe at the time, she grabbed a bunch of spoons…

In this super cute video from WatchCut Video, children of various ages meet a man living with muscular dystrophy and ask some candid questions about his life with the condition. MORE: Talking to family members about your child’s neuromuscular disorder. Amine talks about how having…

Managing a chronic illness can be difficult. There are many different medications to take (often at different times), appointments to remember, symptoms to keep track of, and lots of information to absorb. Thankfully, living in a digital age means that there are numerous mobile apps that can help you manage…

CAP-1002 is a cardiac cell therapy that is currently being investigated in clinical trials for the use of Duchenne muscular dystrophy (DMD)-related cardiomyopathy.  MORE: Nine other areas of research for Duchenne MD. The therapy consists of allogenic cardiosphere-derived cells (CDCs), meaning it’s produced in a laboratory using heart tissue…

https://www.youtube.com/watch?v=9z4jkn4Wv3w In this video from MoveForwardPT, a physical therapist (PT) from the Children’s National Medical Center talks about role PTs play in optimizing movement for children with muscular dystrophy (MD) and spinal muscular atrophy (SMA). MORE: The cost of…

In this video from the Muscular Dystrophy Association, young adults living with muscular dystrophy (MD) reminisce about their experience at the MDA’s summer camp. MORE: Firefighters “fill the boots” for muscular dystrophy. Children and teenagers with muscular dystrophy can get a lot out of an…