Duchenne: Shalom's Lifelong Partner-in-Crime - a Column by Shalom Lim Ern Rong

Shalom is a University of Liverpool graduate, having completed an honors bachelor’s degree in criminology and security in July 2021. Born with Duchenne muscular dystrophy and diagnosed at four months old, they are 26 years old and currently based in the Eastern part of Singapore. Their hope for their column is to advocate for the health and well-being of the muscular dystrophy community in Southeast Asia.

Reflecting on 2 positive years of life, love, and Duchenne

Two days ago I marked the second anniversary of my relationship with my girlfriend, Amanda. As I celebrated this milestone, I found myself reflecting deeply on how much our lives have changed since we became a couple. Duchenne muscular dystrophy (DMD), my lifelong companion, has undoubtedly influenced…

A Singaporean theater production reveals caregiving complexity

I recently had the opportunity to attend a Singaporean theater production titled “Supervision,” thanks to the SingHealth Patient Advocacy Network (SPAN). SPAN is a collective of patients and caregivers who provide feedback to improve healthcare here in Singapore. I’ve been part of it since 2022. The invitation to the play…

As I reflect on life with Duchenne MD, I feel vindicated

Two weeks ago, I stood on stage at the Fullerton Hotel Singapore to receive a Study U.K. Alumni Award for “exceptional efforts in driving inclusion and positive change in society.” The British high commissioner to Singapore handed me the award while my partner, Amanda, and my caregiver, Glenda, cheered me…

Kicking off fresh creative ventures through social media

Despite the significant health challenges I face as a person living with Duchenne muscular dystrophy, I’ve come to realize that creativity can thrive in the most unexpected places. One such place is social media. My girlfriend, Amanda Yip, and I recently embarked on a short-term project with Blind…

When art and advocacy meet onstage

Last Saturday, I performed a monologue titled “Connection” at the Enabling Lives Festival here in Singapore. ART:DIS, a local nonprofit that uses the arts to support people with disabilities, organized the event as part of its BEYOND DIS:PLAY performing arts and theater mentorship program. The festival centered on a…