Duchenne: Shalom's Lifelong Partner-in-Crime - a Column by Shalom Lim Ern Rong

Shalom is a University of Liverpool graduate, having completed an honors bachelor’s degree in criminology and security in July 2021. Born with Duchenne muscular dystrophy and diagnosed at four months old, they are 26 years old and currently based in the Eastern part of Singapore. Their hope for their column is to advocate for the health and well-being of the muscular dystrophy community in Southeast Asia.

I welcome Agamree’s approval with renewed optimism

I received an email on Jan. 12 from Duchenne UK, an important Duchenne muscular dystrophy (DMD) nonprofit in the United Kingdom. Its announcement: “Breaking News! First treatment for all [DMD] patients approved in U.K.” It went on to note that the Medicines and Healthcare products Regulatory Agency,…

Finding love with Duchenne muscular dystrophy

Readers of my column may recall one I wrote last December, titled “How I Define Love With Duchenne Muscular Dystrophy.” In it, I shared my heartfelt thoughts about relationships, romance, and love. Today, I have positive news to share: A few months after I wrote…

The DMD community reminds me of my purpose in life

On Sept. 2, the Muscular Dystrophy Association (Singapore) (MDAS) held its annual Go the Dystance carnival at One Punggol, a community hub that houses the Punggol Regional Library. The event is typically held between SMA Awareness Month in August and World Duchenne Awareness Day on Sept. 7.