Duchenne: Shalom's Lifelong Partner-in-Crime - a Column by Shalom Lim Ern Rong

Shalom is a University of Liverpool graduate, having completed an honors bachelor’s degree in criminology and security in July 2021. Born with Duchenne muscular dystrophy and diagnosed at four months old, they are 26 years old and currently based in the Eastern part of Singapore. Their hope for their column is to advocate for the health and well-being of the muscular dystrophy community in Southeast Asia.

The DMD community reminds me of my purpose in life

On Sept. 2, the Muscular Dystrophy Association (Singapore) (MDAS) held its annual Go the Dystance carnival at One Punggol, a community hub that houses the Punggol Regional Library. The event is typically held between SMA Awareness Month in August and World Duchenne Awareness Day on Sept. 7.

Why I’m grateful for Muscular Dystrophy News Today

While writing this today, I’m marveling at how swiftly the passage of time has occurred. It’s been almost a year since I published my first column for Muscular Dystrophy News Today! In my debut column, I documented how, after more than two decades of battling Duchenne…

After 17 years, my beloved DMD caregiver is moving on

On July 6, I watched my favorite footballer at Chelsea Football Club, César “Dave” Azpilicueta, bid an emotional farewell to fans. I’ve seen him win every trophy possible at club level and captain the side to their second UEFA Champions League triumph in 2021. I even got to meet…