As I noted in previous columns, everyone is different. You are who the other is not. This philosophy also applies to the life experiences that lead to a diagnosis. As a child, I was often referred to as clumsy. While I vehemently denied it in my mind, it…
Hidden Truths – a Column by Adeel Rizvi
Welcome back to “Hidden Truths.” This week I wanted to move away from the style of my first and second columns and discuss how one of the most basic emotions relates to muscular dystrophy (MD) and other chronic illnesses. Guilt occurs when a person feels regret or shame in response…
What does it mean to live? Different people and places may prompt varied answers to this question. For example, in the United States, a person on artificial life-support is considered to be alive, while other people or cultures may not agree with this definition. So, what does it mean to…
How would you respond if I asked, “Who are you?” While the question may seem simple, it is deceptively complex. A college professor of mine once asked the class this question. As students took turns answering to the best of their ability, the professor offered rebuttals replete with “what ifs.”…
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- As my FSHD progression worsens, I’m battling feelings of shame