I’m going on a blind date! I should mention that it is with a book. Regular readers of my column will know that I am happily married to Jason, my husband of nearly 25 years. I got the idea a couple of weeks ago after visiting an antique…
Party of 9 – a Column by Betty Vertin
As a caregiver to three sons living with Duchenne muscular dystrophy (DMD) and a mother to four other children, I have learned a lot over the years. Today, I want to use that knowledge and experience to give back to the community. Being a part of the Duchenne community…
It’s been a busy couple of weeks. There have been lots of appointments and activities, and I’ve been busy running errands around town. I live in a rural community in south central Nebraska. It’s small enough that, no matter where I go, I run into someone I know. I also…
When the germs of cold and flu season find their way into the Vertin household, they crash our party of nine, and no one is spared. A cold or flu can be especially dangerous for my three sons with Duchenne muscular dystrophy (DMD) — Max, Rowen, and Charlie…
I type my columns on Tuesdays, but I write them in my head in the days before. I consider what to write, how to begin, and the words to use to share my life experiences. My family is fun, and my columns often reflect that, to show the lessons I’ve…
January doesn’t just bring a new calendar year. For four of us in this family, it’s when we celebrate our birthdays. A new year of life! I live in Nebraska with my husband and six of the seven children we share. My daughter, Lexi, 24, lives in another town…
I love my house and the home life my husband, Jason, and I have created. My family lives in a four-bedroom, two-bath, finished-basement, ranch-style home in south-central Nebraska. It was brand-new when we bought it, and we were its first owners. Jason and I had been living in a small…
The end of the year offered up two beautiful weeks with my family and very few responsibilities. We canceled pool therapy, had no medical appointments, the kids were out of school, and I took a break from writing. We spent 10 days at home, just us. It was exactly what…
Navigating the holidays creates some logistical problems for my family. It’s not because there are nine of us. We might be a big family, but if we can all fit in our average-sized, ranch-style home, then we can fit in most homes. Having three power wheelchair users in the family…
The holiday season is upon us, and I am already exhausted. I’m well aware of everything I need to do in December, so being this tired already isn’t great. It makes me think about the opening lines of “The Night Before Christmas”: “Twas the night before Christmas when all through…
Recent Posts
- A blind date with a book encourages me to dust off my social life
- New research reveals protein pathway that can slow muscle repair
- Dreaming of solutions to the Olympic-sized challenges of FSHD
- Roche halts development of satralizumab for DMD bone health
- An essay on choosing hope in life with a progressive, degenerative disease