When the germs of cold and flu season find their way into the Vertin household, they crash our party of nine, and no one is spared. A cold or flu can be especially dangerous for my three sons with Duchenne muscular dystrophy (DMD) — Max, Rowen, and Charlie…
Party of 9 – a Column by Betty Vertin
I type my columns on Tuesdays, but I write them in my head in the days before. I consider what to write, how to begin, and the words to use to share my life experiences. My family is fun, and my columns often reflect that, to show the lessons I’ve…
January doesn’t just bring a new calendar year. For four of us in this family, it’s when we celebrate our birthdays. A new year of life! I live in Nebraska with my husband and six of the seven children we share. My daughter, Lexi, 24, lives in another town…
I love my house and the home life my husband, Jason, and I have created. My family lives in a four-bedroom, two-bath, finished-basement, ranch-style home in south-central Nebraska. It was brand-new when we bought it, and we were its first owners. Jason and I had been living in a small…
The end of the year offered up two beautiful weeks with my family and very few responsibilities. We canceled pool therapy, had no medical appointments, the kids were out of school, and I took a break from writing. We spent 10 days at home, just us. It was exactly what…
Navigating the holidays creates some logistical problems for my family. It’s not because there are nine of us. We might be a big family, but if we can all fit in our average-sized, ranch-style home, then we can fit in most homes. Having three power wheelchair users in the family…
The holiday season is upon us, and I am already exhausted. I’m well aware of everything I need to do in December, so being this tired already isn’t great. It makes me think about the opening lines of “The Night Before Christmas”: “Twas the night before Christmas when all through…
I met my husband, Jason, when we were both student athletes at a small college in our hometown. He played football, and I was on the track team. Before we had children and settled into adult life, Jason and I enjoyed going to parties. We had so much fun together.
When I was a young mom watching my oldest daughter, Lexi, move from upper elementary to middle school, I often felt heartbroken and helpless. She was an excellent student and friend at school, but when she came home, her exhaustion could turn into crankiness, and it felt like she was…
My oldest son, Max, was diagnosed with Duchenne muscular dystrophy (DMD) in 2010, when he was 4. The doctor told us to expect that he’d need help with all of his activities of daily living in his teens and that he would die in his early 20s. Max turns…
Recent Posts
- I have 5 essential tools for managing cold and flu season with Duchenne MD
- FDA fast tracks Dyscorban for treating heart problems in Duchenne
- My emotions blurred as I watched my play from ‘The Other Side’
- MDA-led project to map how human muscles repair themselves
- My willingness to educate others about MD benefits all of us