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Some days do not want to be good ones. We had one of those days this past Sunday. I was determined to get to church on time. From the get-go, many factors were working against me. For one, my husband wasn’t home. My son without Duchenne, Chance, is playing…
The seasons are all special to me and necessary to one another. Each holds its own challenges and wonder. Here in Nebraska, we are fortunate enough to experience all four — winter, spring, summer, and fall. Every time I enter a new season, I think it’s my favorite, but by…
Motherhood was not something I was always sure I wanted. The idea of motherhood scared me. I didn’t think I had what it took. When I think of the word mother, I think of love — and I feared I didn’t have enough to give. That changed the moment I…
New places, new people, new things: They’re exciting! As a parent, I encourage my children to try new things, step outside their comfort zones, and see what the world has to offer. There is no difference in how I parent my children with Duchenne muscular dystrophy (DMD) and my…
I drive a massive, commercial-size, accessible, 12-passenger Dodge Promaster van with a high roof. And I love it for many reasons. Our van was never — and is not now — my dream car. But just like Duchenne muscular dystrophy (DMD), it is something I have learned to…
Summer! The best time of year for my kids. We are currently counting down the days left of school. In Nebraska, school is out for summer break by the middle of May. So next week, all my children will be on summer break! My kids will spend plenty of…
I had one of those moments that hit you hard with a dose of the future last week. And those hits hurt. I was pushing my baby daughter, Callie, in her stroller. We were on a walk to the middle school my son Rowen attends. I happily thought about it…
I write my columns on Tuesdays. I do this because I procrastinate. My deadline is Wednesday morning, and I’m not about to wake up early on Wednesdays to get it done. I am not a morning person, but I’m too old and have too many kids to stay up late…
I’m late to pick up the kids from school a lot now. I haven’t always been this way, though. Last year, I’d arrive 10 minutes early every day and use it for some quiet prayer time. But since having a baby earlier this year, I arrive late to school…
My family has been on the Duchenne muscular dystrophy (DMD) journey for almost 12 years. During that time, I’ve quietly watched how friendships and making friends have changed for each of my three sons with DMD as they have grown. I’ve traveled farthest down this road with my oldest…
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