Each of us dealing with facioscapulohumeral muscular dystrophy (FSHD) is on a slightly different trajectory. For some, the disease is a series of small losses that level out to a period of relative stability. For others, the disease is a steady, steep decline. For some, the disease remains confined…
I was raised to put my best foot forward, keep a stiff upper lip, and always keep going. My favorite Bible verse is Romans 8:28: “And we know that all things work together for good to those who love God, to those who are the called according to…
Having just moved to Pittsburgh from rural Somerset County, Pennsylvania, one of the many things I had to attend to was finding a new primary care physician. Back in Somerset, there weren’t many choices. Around 2003, I started with a doctor who was fresh out of residency and didn’t…
As I start a new adventure writing for Muscular Dystrophy News Today, I’d say the first sentence is the hardest. I’m so glad I got that out of the way! I’ve joined the team at Bionews, the parent company of this site, to share my experience dealing with…
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