Hawk's-Eye View - a Column by Hawken Miller

constipation, Dungeons & Dragons, COVID-19 vaccine

Hawken is a recent graduate from the University of Southern California and a young journalist with Duchenne muscular dystrophy. He has previously worked for the Washington Post, Sacramento Bee, KTLA 5 News and at USC Annenberg Media. When not writing columns, he’s reporting on rare disease-related news for the publisher of this website, BioNews.

Life Isn’t Fair, but I Can Make the Best of It

If we lived in a fair world, Duchenne muscular dystrophy would not exist.  Unfortunately, life isn’t fair, and I was diagnosed with the muscle-wasting disease 18 years ago. Even with a bleak future, there’s still something I can do about it. I can refuse to…

Finding a Job That’s a Good Fit for You and Your Health

I realize that having a full-time job as well as Duchenne muscular dystrophy can be challenging. Balancing my time between self-care, including stretching and doctor’s appointments, and work can be physically and emotionally draining. That’s why you must find a job that is a good fit for your situation.

Goals Can Simplify Our Complicated Lives

It can sometimes feel like everything is against us when doctor appointments and physical barriers bombard us. If we focus on the day-to-day challenges, we forget what we’re doing on earth. I recently discovered that practical goal setting helps you accomplish more than you ever thought possible. The mere act…