Duchenne: Shalom's Lifelong Partner-in-Crime — Shalom Lim Ern Rong

I received an email on Jan. 12 from Duchenne UK, an important Duchenne muscular dystrophy (DMD) nonprofit in the United Kingdom. Its announcement: “Breaking News! First treatment for all [DMD] patients approved…

As I look forward to the year ahead, I’m filled with a mix of emotions: unbridled joy at the thought of spending my first Valentine’s Day with my girlfriend, Amanda; a sense of dread…

On Dec. 10, I performed “Stand by Me” by Ben E. King at the year-end music recital hosted by ART:DIS, a Singapore organization that supports the artistic development of members of the disability community.

As this column is published, it’s the eve of the fourth anniversary of my brother Isaac‘s death. He passed away on Dec. 7, 2019, from heart disease related to his Duchenne…

Shalom Lim, who lives with Duchenne muscular dystrophy, celebrates a relationship milestone and affirms that waiting for and finding true love is worth the effort.

Late last month I turned 28 years old, the age my brother, Isaac, was when he passed away from Duchenne muscular dystrophy (DMD). I have the same disease, and it’s put me…

On Sept. 2, the Muscular Dystrophy Association (Singapore) (MDAS) held its annual Go the Dystance carnival at One Punggol, a community hub that houses the Punggol Regional Library. The event is typically held…

Aug. 14 isn’t just another day for my family. This year, our conversations were imbued with heartfelt remembrance as we gathered around the dinner table. We celebrated the birthday of my brother, Isaac,…

While writing this today, I’m marveling at how swiftly the passage of time has occurred. It’s been almost a year since I published my first column for Muscular Dystrophy News Today!…

After 17 years, Shalom Lin is preparing to say good-bye to his caregiver, Glenda. Goodbyes are always painful but often necessary. Nothing lasts forever, so we must enjoy what we have with the people we love, he writes.

One cozy night last September, my parents and I relaxed in the living room after dinner. My father turned to me and asked for a movie recommendation. It’d been awhile since we’d done this…

Readers of my column are familiar with my Duchenne muscular dystrophy (DMD) story, which began with my diagnosis in February 1996. My older brother, Isaac, was diagnosed with DMD at birth…