SciFam is a four day, in-person, neuromuscular conference for stakeholders in congenital muscular dystrophy, nemaline myopathy, and titinopathy. This event is being hosted by Cure CMD, A Foundation Building Strength for Nemaline Myopathy and Team Titin. Please email [email protected] for more information.
Join us for a free, full day workshop focused on improving the quality of life for individuals with Duchenne and Becker Muscular Dystrophy. Insightful presentations on standards of care, family support, physical therapy and medical equipment, research and clinical trials, and an open house with local resources, equipment vendors and pharma/biotech representatives. Breakfast and lunch […]
Join us for a free, full day workshop focused on improving the quality of life for individuals with Duchenne and Becker Muscular Dystrophy. Insightful presentations on standards of care, family […]
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