• Posted by Leah Leilani on March 18, 2019 at 8:20 pm

    At about 10 months of age, I began showing some odd behaviors. I started to turn down food and I began have sensory issues like sensitivity to tags and seams on clothing. I had a lot of developmental delays when it came to walking, talking, and learning the alphabet. 

    After months of physical therapy and tests , the doctors at The University of California in Los Angeles declared that I had Autism. 

    As I grew up, it became clear that those doctors were wrong. I developed an out going personality was rarely shy when performing with my dance group. 

    Years later and after gaining knowledge about Mitochondrial Myopathy, this misdiagnosis is actually quite common among those with early signs of Mito. The academic developmental delays were due to brain fog and my refusal to eat was because of my lack of muscle strength. 

    Were you misdiagnosed in the early stages of your disease? What was your misdiagnosis and how did the news affect you?

    replied 5 years, 1 month ago 1 Member · 0 Replies
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