“If loneliness comes from having nothing in common with those around you, then even having a condition like Duchenne makes you part of something, and when you are part of something, you are not alone.”
It is all too common to feel lonely with a rare disease. The same can be said for the parents of children with rare diseases. In this column, Betty writes about how she wishes she had closer relationships with Duchenne moms-moms that she could relate better to.
As a parent of a child with MD, do you often feel lonely and unable to relate to parents with non-disabled children?