• This topic is empty.
Viewing 0 reply threads
  • Author
    • #17911
      Leah Leilani

        “If loneliness comes from having nothing in common with those around you, then even having a condition like Duchenne makes you part of something, and when you are part of something, you are not alone.”

        It is all too common to feel lonely with a rare disease. The same can be said for the parents of children with rare diseases. In this column, Betty writes about how she wishes she had closer relationships with Duchenne moms-moms that she could relate better to.

        As a parent of a child with MD, do you often feel lonely and unable to relate to parents with non-disabled children?

    Viewing 0 reply threads
    • You must be logged in to reply to this topic.

    ©2023 KLEO Template a premium and multipurpose theme from Seventh Queen


    We're not around right now. But you can send us an email and we'll get back to you, asap.


    Log in with your credentials


    Forgot your details?

    Create Account