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      Leah Leilani
      Participant

        “Find those with whom you can share even the scariest thought in your head. Find those with whom you can simply just sit, saying nothing, while they just, inherently, get it.”

        Prudence shares in her new article how finding other parents with disabled children has been a comfort and a blessing along the unpaved journey with her son, Alfie and his diagnosis of LAMA2.

        Have you found other parents with disabled children to relate to and befriend? Do you find comfort in speaking to these members of your community rather than a doctor?

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