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      Leah Leilani
      Keymaster

      “I understand that having Duchenne makes me rare — it’s pretty obvious. But please ignore the diagnosis as much as you can. Don’t see the disease; instead, see the person affected by the disease. My best friends see me for my “rare” personality, not my “rare” genetic makeup or life situation.”

      This Rare Disease Day, Hawkin encourages his readers to focus on celebrating the uniqueness of our personalities and life stories rather than solely the conditions we have in his new article “Yes, We Are Rare, but Please Realize We Are Human First.”

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