• Diagnosis​ ​Info​ ​and​ ​General​ ​Questions

  First signs

  Posted by Danielle "Dani" Liptak on February 19, 2019 at 6:06 am

  There are different types of MD; some start in infancy, others may not appear until early adulthood. At what point in your life did you FIRST notice something was different?  I was around the age of 12 when I had a difficult time lifting my right arm fully above my head. One day while getting ready I told my dad and he thought maybe I pulled something playing on the monkey bars. I was a very active and adventurous child!

  When did you notice something about yourself (physically) but did not know exactly what was causing it? Another example would be my smile.  In pictures, when I was younger, I noticed my top teeth weren’t visible when I smiled.  Now as an adult I have been told regularly to smile more, but now I know the cause is the FSHD.

  Danielle "Dani" Liptak replied 5 years, 11 months ago 1 Member · 0 Replies

  • diagnoses MD
  • health and muscular dystrophy
  • living with MD
  • muscular dystrophy
  • neurology and MD
  • personal stories and muscular dystrophy
  • rare diseases
  • signs of muscular dystrophy
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