• Advocacy Work

  MD and Me: My Two Daughters, Part 1

  Posted by Danielle "Dani" Liptak on October 7, 2019 at 1:10 pm

  Today’s #MDandMe story, Samantha Greenway talks about her oldest daughter who has SEPN1 also known as Rigid Spine Syndrome. Can you relate to Samantha’s story as a parent? What is it like for you as a parent when you see people stare at your child? Do you want to say something but know it would not be something your child would want? Are you proud of your child and learn from them?

  Danielle "Dani" Liptak replied 4 years, 6 months ago 1 Member · 0 Replies

  • awareness and MD
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  • Rigid Spine Syndrome
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