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    • #16231

      I am on social media a lot, and I follow many accounts. There are some accounts that I follow more closely than others, and usually, it is because they have muscular dystrophy. I feel a connection with them and appreciate them opening up their lives to share with the world. Do you follow people on social media that have your type of MD? Have you ever reached out and spoken to them? Do you feel inspired in your own life watching them on social media, or does it sometimes bother you or make you envious of their lives?

    • #16315
      Glendalee Deruiter
      Participant

      I post a lot as well on social media. My sanity and relaxation is music. So I use kareoke tunes change the words in encouragement to our Muscular dystrophy diseases that are warriors like us. I’d share here but I don’t really know how too.

      • #17501
        Denis
        Participant

        Hi Glendalee,
        I’ve just read your bio and would like to wish you all the best,I too have had to ride the waves so to speak but still like being around TG
        My father had MD1 as did all of his 4 brothers ,coming from Ireland they were very Catholic and lived much to themselves. They knew very little about the disease then.
        It is what it is , here in Belgium where I live now the leaves are falling and my three dogs are sleeping and I have forgotten when my next appointment is,finding the balance is very important for me.

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