Muscular Dystrophy News Forums Forums MD Awareness Events and Activities PPMD’S 2019 25th ANNUAL CONFERENCE


    Posted by danielle-dani-liptak on March 26, 2019 at 7:41 am

    Parent Project Muscular Dystrophy is holding their 25th annual conference in Orlando Florida JUNE 26 – JUNE 30, 2019.

    This year you will hear current and critical information on:

    • Managing care at every age of Duchenne–what aspects of care you need to know now and in the future
    • Understanding Duchenne mutations and disease course
    • Duchenne clinical trials, both ongoing and upcoming, the advancements and the timelines
    • Gene Therapy and where this research is heading
    • Accessing therapies and the future of treatments
    • Impacting research, trials, and treatment through advocacy and collaboration
    • Encouraging independence and social integration
    • Parent to parent real life information – managing your family
    • Managing Behavior issues in Duchenne
    • Living with Duchenne – those living with Duchenne spend time with and learn from our PPMD Adult Advisory Committee about everyday life

    Register here

    danielle-dani-liptak replied 5 years ago 1 Member · 0 Replies
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