• Events and Activities

  PPMD’S 2019 25th ANNUAL CONFERENCE

  Posted by Danielle "Dani" Liptak on March 26, 2019 at 7:41 am

  Parent Project Muscular Dystrophy is holding their 25th annual conference in Orlando Florida JUNE 26 – JUNE 30, 2019.

  This year you will hear current and critical information on:

  • Managing care at every age of Duchenne–what aspects of care you need to know now and in the future
  • Understanding Duchenne mutations and disease course
  • Duchenne clinical trials, both ongoing and upcoming, the advancements and the timelines
  • Gene Therapy and where this research is heading
  • Accessing therapies and the future of treatments
  • Impacting research, trials, and treatment through advocacy and collaboration
  • Encouraging independence and social integration
  • Parent to parent real life information – managing your family
  • Managing Behavior issues in Duchenne
  • Living with Duchenne – those living with Duchenne spend time with and learn from our PPMD Adult Advisory Committee about everyday life

  Register here

  Danielle "Dani" Liptak replied 5 years, 10 months ago 1 Member · 0 Replies

  • annual conference
  • DMD
  • Duchenne muscular dystrophy
  • MD
  • muscular dystrophy
  • parents with children with DMD
  • PPMD
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