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    • #11914

      Parent Project Muscular Dystrophy is holding their 25th annual conference in Orlando Florida JUNE 26 – JUNE 30, 2019.

      This year you will hear current and critical information on:

      • Managing care at every age of Duchenne–what aspects of care you need to know now and in the future
      • Understanding Duchenne mutations and disease course
      • Duchenne clinical trials, both ongoing and upcoming, the advancements and the timelines
      • Gene Therapy and where this research is heading
      • Accessing therapies and the future of treatments
      • Impacting research, trials, and treatment through advocacy and collaboration
      • Encouraging independence and social integration
      • Parent to parent real life information – managing your family
      • Managing Behavior issues in Duchenne
      • Living with Duchenne – those living with Duchenne spend time with and learn from our PPMD Adult Advisory Committee about everyday life

      Register here

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