- This topic has 0 replies, 1 voice, and was last updated 5 months, 2 weeks ago by
.
Viewing 0 reply threads
-
Posts
-
-
When a newly diagnosed individual contacts the FSHD society, they can find patient education and support and a broad spectrum of research initiatives. The FSHD Society wanted a unified database of individuals with FSHD who were willing to participate in research initiatives. PACT, Patients Accelerating Clinical Trials, is a way to participate in all types of research, such as surveys, volunteering for a clinical trial, or joining the upcoming PACT FSHD Registry.
Does your type of MD have a registry similar to the PACT?
-
Viewing 0 reply threads
- You must be logged in to reply to this topic.
