• Diagnosis​ ​Info​ ​and​ ​General​ ​Questions

  The PACT FSHD Registry

  Posted by danielle-dani-liptak on October 5, 2022 at 8:41 am

  When a newly diagnosed individual contacts the FSHD society, they can find patient education and support and a broad spectrum of research initiatives. The FSHD Society wanted a unified database of individuals with FSHD who were willing to participate in research initiatives. PACT, Patients Accelerating Clinical Trials, is a way to participate in all types of research, such as surveys, volunteering for a clinical trial, or joining the upcoming PACT FSHD Registry.

  Does your type of MD have a registry similar to the PACT?

  danielle-dani-liptak replied 1 year, 2 months ago 1 Member · 0 Replies

  • clinical trials and MD
  • database for MD
  • FSHD
  • fshd society
  • living with MD
  • newly diagnosed MD
  • Patients and MD
  • The PACT FSHD Registry
  • volunteering and MD
• 0 Replies

Log In to Reply