Viewing 0 reply threads
  • Author
    • #18208

      When a newly diagnosed individual contacts the FSHD society, they can find patient education and support and a broad spectrum of research initiatives. The FSHD Society wanted a unified database of individuals with FSHD who were willing to participate in research initiatives. PACT, Patients Accelerating Clinical Trials, is a way to participate in all types of research, such as surveys, volunteering for a clinical trial, or joining the upcoming PACT FSHD Registry.

      Does your type of MD have a registry similar to the PACT?

Viewing 0 reply threads
  • You must be logged in to reply to this topic.

©2023 KLEO Template a premium and multipurpose theme from Seventh Queen


We're not around right now. But you can send us an email and we'll get back to you, asap.


Log in with your credentials


Forgot your details?

Create Account