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      Leah Leilani
      Keymaster

       

      Having friends that understand your disease and your needs is always heartwarming. But being around someone with a disability doesn’t come naturally for most people. Here are some things to know about those of us with  Muscular Dystrophy:

      •pulling out a chair from a table for someone who uses a wheelchair is always appreciated. 

      •don’t help us unless we ask you for help. Independence matters a lot to us. 

      •don’t be shy to ask us about our disability. We like it when people show an interest. Just remember to keep the questions to a minimum. 

      •we will tell you if an outing or date is something we can’t do. Don’t assume that we can’t do something and don’t push us to do anything we don’t want to do. 

      •treat us like you would any other friend. We want to feel included and valued just like everyone else. 

      •know that we might have to cancel plans at the last minute. The state of our health can be unpredictable. Just be flexible with us. 

      Is there anything else you think people should know about how to interact with individuals with MD? What are some things that your friends do for you that you find helpful?

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