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I found out in my mid forties that something was wrong and I was loosing strength and coordination. After many years I was diagnosed and it was confirmed through genetic testing that I have Myotonic Muscular Dystrophy type 2. I had to retire on disability at 55 and have been active in a power chair since 2008. My greatest regret is that I didn’t know about it until I had kids and I have passed this disease on to them and my grandchildren. I am hopeful that genetic research will yield some treatment and eventually a cure before they begin to show symptoms.