I didn’t know many kids with Duchenne muscular dystrophy growing up. Everyone around me was physically able; I was the only one who couldn’t keep up. Now, as I’ve gotten older, I understand the importance of finding friends who have the same disease. When I meet someone…
Hawk’s-Eye View — Hawken Miller

It’s hard to believe: This is the 100th column I’ve written for Muscular Dystrophy News Today. It will also be my last for the near future. “Hawk’s-Eye View” has been a part of me for the past three years, as I graduated college, completed a five-month internship at…

I discovered something different about Washington, D.C. when I moved there for the summer: wheelchair-accessible Ubers are everywhere. Los Angeles, where I come from, has a dearth of accessible Ubers. Having the ability to take an Uber with my power chair opens up a…
Duchenne muscular dystrophy is not easy for people to wrap their heads around. Most haven’t heard of the disease, which is rare and affects about 1.02 males ages 5 to 24 per 10,000 in the United States. When people see me walking, they might…
It’s hard to find time to spend outside, especially since I have a disease that hampers my mobility, but being outdoors reinvigorates and reboots me, and reconnects me to nature and God. During weekends I could lie under the covers well into the afternoon and watch…
I recently started my internship at The Washington Post in Washington, D.C. Getting to this point was a culmination of blood, sweat, and tears throughout all levels of education, and it’s not going to get any easier in the professional world. Establishing myself…
Watching YouTube videos allows me to simultaneously learn something new, laugh out loud, and connect with the gaming community. I never thought I could start a YouTube channel on my own. With the small number of videos I’ve produced on the…
Combining medical appointments with school, work, and finances can sometimes overwhelm me. My mom used to be the keeper of my schedule, but now it’s all up to me, and the pressure is on. The best way for me to reduce stress when everything seems to happen at…
Having Duchenne muscular dystrophy is hard because of its progressive nature. I can no longer participate in activities the way I have in the past. As the disease advances, it is important for me to select friends carefully. Not everyone sees past the wheelchair and my weakness…
In a past column, I wrote about focusing on the things I can do rather than those I can’t. One of the things I can do is travel, and I’m fortunate to have visited many places around the world. Traveling is possible even with…
I’m not going to be an athlete — and that’s OK. I’ve found a competitive outlet through video games. While sports helps to build friendships and engage in teamwork (I had felt excluded from that opportunity for comradery), video games have leveled the playing field for me.
College is a busy time in my life. I can easily overbook my schedule and have little time to do homework. I’ve resisted the temptation to stay up late on many occasions. I know the power of sleep. Sleeping about nine hours a night gives me a chance…
I attended my final class at the University of Southern California (USC) last Wednesday, and I thought this would be a good time to look back at the ups and downs of navigating college with a disability. The support of those around me…
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