Here’s How I Explain My Experience with Duchenne to Others
Duchenne muscular dystrophy is not easy for people to wrap their heads around. Most haven’t heard of the disease, which is rare and affects about 1.02 males ages 5 to 24 per 10,000…
Hawk’s-Eye View — Hawken Miller
Hawken is a recent graduate from the University of Southern California and a young journalist with Duchenne muscular dystrophy. He has previously worked for the Washington Post, Sacramento Bee, KTLA 5 News and at USC Annenberg Media. When not writing columns, he’s reporting on rare disease-related news for the publisher of this website, BioNews.
Featured Post
We Need to Learn How to Love Ourselves
There are a lot of things to hate about Duchenne muscular dystrophy. Last weekend, I found myself uncontrollably crying while FaceTiming a friend as I was explaining why I wanted to be in a relationship before I lost…
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You Can Experience the Beauty of the Outdoors, Even with Duchenne
It’s hard to find time to spend outside, especially since I have a disease that hampers my mobility, but being outdoors reinvigorates and reboots me, and reconnects me to nature and God. During weekends I…
Moving into a New Life with Duchenne
I recently started my internship at The Washington Post in Washington, D.C. Getting to this point was a culmination of blood, sweat, and tears throughout all levels of education, and it’s not…
Expressing Myself on YouTube with a Disability
Watching YouTube videos allows me to simultaneously learn something new, laugh out loud, and connect with the gaming community. I never thought I could start a YouTube channel on my own.
Scheduling Out Life Makes Living with a Disability Easier
Combining medical appointments with school, work, and finances can sometimes overwhelm me. My mom used to be the keeper of my schedule, but now it’s all up to me, and the pressure is on. The best way…
The Secret to Finding the Right Friends
Having Duchenne muscular dystrophy is hard because of its progressive nature. I can no longer participate in activities the way I have in the past. As the disease advances, it is important for me to select…
Traveling the World Is Possible, Even with Duchenne
In a past column, I wrote about focusing on the things I can do rather than those I can’t. One of the things I can do is travel, and I’m fortunate to have visited…
Video Games Let Me Be Competitive Without the Need to Be Physical
I’m not going to be an athlete — and that’s OK. I’ve found a competitive outlet through video games. While sports helps to build friendships and engage in teamwork (I had felt excluded from that opportunity for…
Dealing with Duchenne and the Power of a Good Night’s Sleep
College is a busy time in my life. I can easily overbook my schedule and have little time to do homework. I’ve resisted the temptation to stay up late on many occasions. I know the power of…
Achieving Balance in College Was Key to My Success
I attended my final class at the University of Southern California (USC) last Wednesday, and I thought this would be a good time to look back at the ups and downs of…
Finding My Purpose in Life Despite Duchenne Muscular Dystrophy
My faith in God and my spiritual and practical gifts have helped me to find a purpose worth living for in a body and world that make it difficult. Because of Duchenne muscular dystrophy, I can solve all…
Learning to Be Social with Duchenne
Living with Duchenne makes a lot of things difficult, including socializing with other people. Throughout my life, especially as the disease has progressed, it’s gotten harder to relate to people without physical disabilities. Even with the added…
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