Pain is a common and frequent problem among patients with Duchenne muscular dystrophy (DMD) and is associated with physical limitations and poor quality of life in these patients, according to a new study conducted by researchers in Brazil. The authors argue that knowing several aspects about pain, such as frequency,…
Resolaris, a potential intravenous protein therapy developed by aTyr Pharma for the treatment of rare myopathies is generally safe and well tolerated in patients with Facioscapulohumeral Muscular Dystrophy (FSHD) according to results presented at the 21st International Congress of the World Muscle Society.
According to the National Institutes of Health (NIH) there are more than 30 different types of muscular dystrophy (MD). Here is more information about nine of the most common forms. 1. Duchenne Muscular Dystrophy (DMD) DMD is the most common form of the disease and approximately half of all…
This video from Muscular Dystrophy Queensland follows several patients who have different forms of degenerative muscular conditions. Watch an animated explanation of muscular dystrophy here. Eight-year-old Jack has type II spinal muscular atrophy (SMA), and 49-year-old Tracy has facioscapulohumeral muscular dystrophy (FHSD MD). The two talk about the difficulties…
A gene called CD40, which is an important modulator of the immune system, may determine the severity of Duchenne muscular dystrophy (DMD) according to a study published in The American Journal of Human Genetics. This finding suggests that drugs targeting CD40 may improve the symptoms of DMD.
Turmeric Tea When the temperatures fall, stay warm with turmeric tea. This turmeric tea with ginger may have antioxidants and anti-inflammatory benefits. Merriam Webster defines antioxidants as a substance (as beta-carotene or vitamin C) that inhibits oxidation or reactions promoted by oxygen, peroxides, or free radicals and a substance that is added…
People with Duchenne muscular dystrophy are most anxious and worried about their condition when they have to transition to using a wheelchair or a respirator due to the progression of their condition, found a study published in the International Journal of Qualitative Studies on Health and Well-being.
The muscular dystrophy community is mourning the loss of one of their advocates this week. Rapper and disability rights activist, Darius Weems, lost his battle with Duchenne muscular dystrophy at the age of 27 on Sunday, October 9. Protein linked to impaired muscle degeneration in Duchenne muscular dystrophy. Find…
It’s that time of year when everyone starts to get sick and pass around their cold and flu germs. Having a chronic illness means that your immune system is already compromised, which makes picking up other people’s winter illnesses harder to avoid. However, you don’t have to lock yourself away…
Duchenne muscular dystrophy (DMD) is a type of muscular dystrophy–a genetic disorder identified by progressive muscle degeneration and weakness. Recently the U.S. FDS approved Exondys 51 (eteplirsen) as a treatment for Duchenne muscular dystrophy patients with a confirmed mutation of the dystrophin gene amenable to exon 51 skipping. Dylan…
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