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Betty has a master’s degree in management from Doane College that serves her well as a mother of several. Prior to her becoming a stay-at-home mother and caregiver, Betty worked in the nonprofit sector serving several programs in her community. Betty lives in Nebraska with her husband, John, and their children. Betty’s sons Max, Rowen, and Charlie live with Duchenne muscular dystrophy.
Max was diagnosed 11 years ago at age 4; Rowan and Charlie were diagnosed in the months following at ages 2 years and 7 months. In her limited free time, Betty enjoys walking her dog, reading, writing, gardening, and DIY projects. She hopes her column, “Party of 9,” helps others learn more about her sons’ disease and serves as an avenue to connect with and support other families living with Duchenne.
Some days do not want to be good ones. We had one of those days this past Sunday. I was determined to get to church on time. From the get-go, many factors were working against me. For one, my…
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It’s homecoming week here in Nebraska. Our local high school has its homecoming football game today, and the dance is tomorrow. I love homecoming. It’s a time of fun and excitement. The crowd at the football game always…
I saw a meme today that said, “I need a day between every day to recover from the day before and prepare for the upcoming day.” I could not have identified with anything more today. If you haven’t guessed…
Our family has encountered many challenges in our journey with Duchenne muscular dystrophy, and there will be more to come. If I were to ask the question, “What is the hardest part of Duchenne?” in a room full of…
It’s tempting to label the siblings of those who have Duchenne muscular dystrophy as the “unaffected siblings.” But I can never seem to get those words out of my mouth. Siblings are indeed affected by Duchenne. In my family,…
My oldest son with Duchenne muscular dystrophy, Max, starts his sophomore year in high school this week. He will be halfway through his high school education by the end of the school year. For a long time, I was…
My kids return to school next week. As always, there is so much to do to get ready. In addition to back-to-school shopping and open house, I have to ensure Max, Rowen, and Charlie, my sons with Duchenne muscular…
A hostess I am not! Planning a child’s birthday party or hosting a team meal is the extent of my party planning skills. I am usually introverted and quiet, and only a few people will hear me talk much.
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