Colin Werth, 30 years old, was diagnosed with Duchenne in 1998, and lives in Farmville, Virginia. He describes the character traits he seeks in members of his healthcare team.

I’ve seen some providers who are kind of not willing to admit that they don’t know something.

And yeah, not being afraid to say, “I don’t know,” but find the right person to deal with this issue for you.

Instead of just saying, or trying to give you an answer that may not be the best answer. So, yeah, just being open and honest.

The thing’s having a doctor that’s a good listener and understanding and willing to spend that time with you. I think that applies just for anyone if you want to find a good provider.