The DMD community reminds me of my purpose in life

On Sept. 2, the Muscular Dystrophy Association (Singapore) (MDAS) held its annual Go the Dystance carnival at One Punggol, a community hub that houses the Punggol Regional Library. The event is typically held between SMA Awareness Month in August and World Duchenne Awareness Day on Sept. 7.

National LGMD Conference Builds the MD Community

This past weekend, I had the opportunity to take part in a very special conference in Chicago. I’d had the honor of seeing this event grow from the idea stage; the first planning meetings were over a year and a half ago. This was a watershed moment, as…