https://www.youtube.com/watch?v=9z4jkn4Wv3w In this video from MoveForwardPT, a physical therapist (PT) from the Children’s National Medical Center talks about role PTs play in optimizing movement for children with muscular dystrophy (MD) and spinal muscular atrophy (SMA). MORE: The cost of…

In this video from the Muscular Dystrophy Association, young adults living with muscular dystrophy (MD) reminisce about their experience at the MDA’s summer camp. MORE: Firefighters “fill the boots” for muscular dystrophy. Children and teenagers with muscular dystrophy can get a lot out of an…

When James Baxter-O’Shea and his family moved from suburban Sydney to a small country town called Oberon, they were overwhelmed by the welcome they received. MORE: Inspirational young people with muscular dystrophy: Hayleigh Barclay However, since the family’s 18-year-old minivan’s so unreliable, the 21-year-old found that he was spending more and more…

This Muscular Dystrophy UK video is all about Robert Watson from Renfrew, Scotland. The 29-year-old was diagnosed with Duchenne muscular dystrophy 23 years ago, when he was just six years old. In his spare time, Robert likes to play powerchair football and socialize with his friends at nightclubs, concerts…

This video from Muscular Dystrophy UK is all about 16-year-old Karis Williamson from Inverness, Scotland. Karis used to love going to school, but as she got older, she found it frustrating and felt like an unvalued member of the class. Feeling left out and like a burden, she…

A neuromuscular disorder diagnosis will have a profound effect on the whole family. Younger siblings often don’t fully understand what a neuromuscular disorder is or what it means for their brother or sister. MORE: How to talk to your child about their neuromuscular disorder.  It’s best to be upfront and…

This video from Muscular Dystrophy UK is all about Hayleigh Barclay. Hayleigh is a 27-year-old woman from South Ayrshire, Scotland, who has spinal muscular atrophy (SMA) type 2. MORE: Teen with muscular dystrophy launches YouTube gaming channel to highlight the disease.  Hayleigh’s passion is music and film.

In this video from Muscular Dystrophy UK, two teenagers share what it’s like living with the disease and some of the frustrations they experience on a day-to-day basis. MORE: How service dogs can benefit people with neuromuscular disorders. Fourteen-year-old Sam from Cheltenham and 13-year-old Zoe…

  Austin Keihm is a 21-year-old from Hawaii who loves to create art. According to a report on Khon2.com, Keihm’s old high school teacher came up with the idea to use his artwork on T-shirts, and donate the proceeds to the family to help pay for Austin’s medical expenses. MORE: T…