Living With a Degenerative Muscular Condition

This video from Muscular Dystrophy Queensland follows several patients who have different forms of degenerative muscular conditions. Watch an animated explanation of muscular dystrophy here.  Eight-year-old Jack has type II spinal muscular atrophy (SMA), and 49-year-old Tracy has facioscapulohumeral muscular dystrophy (FHSD MD). The two talk about the difficulties…

PTC’s STRIVE Awards Honor 4 DMD Advocacy Groups on 4 Continents

 PTC Therapeutics marked Sept. 7 — World Duchenne Awareness Day — by announcing the four winner of the company’s 2016 global STRIVE Awards (Strategies to Realize Innovation, Vision and Empowerment) program. STRIVE awards are granted in recognition of extraordinary excellence and innovation by nonprofit organizations that serve rare disease communities, such as…