Last December, after Garry and Chantal Whitehouse noticed their son having difficulty sitting up and crawling, they received sad news that their one-year-old, Jenson, had Duchenne Muscular Dystrophy. This meant that their child would have to grow up dependent on a wheelchair.
The most unexpected thing happened while the family was watching an episode of Big Build on television. Coincidentally, during a feature on a young boy with various health conditions, Jenson pulled himself up onto his walker and began walking around the room.
While the Whitehouse family are still aware of the severity of this disease, they are hopeful this miracle will last long enough for their son to experience more of his precious childhood. They are also hoping that others find out, and learn to remain hopeful in the face of the disease, despite the odds.
Because this rare disease commonly affects young boys and robs them of a chance to have a normal childhood and play sports, the American Football Coaches Association (AFCA), a 10,000-strong organization, and Parent Project Muscular Dystrophy (PPMD), the most prominent non-profit organization in the country dedicated to supporting DMD, came up with the Coach to Cure MD program.