Yale New Haven Children’s Hospital Clinic Named Certified Duchenne Care Center

Yale New Haven Children’s Hospital Clinic Named Certified Duchenne Care Center

Yale New Haven Children’s Hospital’s (YNHCH) Muscular Dystrophy Program has been named a Certified Duchenne Care Center by Parent Project Muscular Dystrophy (PPMD), a nonprofit organization dedicated to ending Duchenne muscular dystrophy (DMD).

PPMD’s Certified Duchenne Care Center Program, which was started in 2014, supports standardized, comprehensive care and services for people with DMD. The YNHCH clinic is the 13th to be certified.

Patients there receive coordinated, multidisciplinary care to diagnose and treat DMD and other pediatric neuromuscular disorders.

Brian Smith, MD, and Cristian Ionita, MD, co-direct the clinic.

“Yale New Haven Children’s Hospital Muscular Dystrophy Program is excited and proud to be part of such a select group of centers. This is a recognition of the exceptional care that patients with Duchenne muscular dystrophy receive at our institution. We are looking forward to a fruitful collaboration with PPMD,” Ionita said in a press release.

He was recently recruited from Seattle Children’s Hospital, another certified center.

“Dr. Ionita is joining a compassionate team of experienced Duchenne providers, and will bring to this team his knowledge and experience of working within this network of Certified Duchenne Care Center providers. This partnership will be an asset to New Haven and the greater Connecticut community. We are thrilled to have Yale New Haven Children’s Hospital join our growing network of Certified Duchenne Care Centers,” said Kathi Kinnett, MSN, CNP, senior vice president of clinical care at PPMD.

Kinnett said her organization receives numerous requests from centers seeking certification.

“When PPMD launched our certification program in 2014, we had no idea that the Duchenne community would respond so positively. Families have come to rely on our certification as an indication that these clinics are the best of the best. We will continue to certify more clinics across the country throughout 2017, recognizing teams of physicians for their leadership in Duchenne care, which in turn will enable families to make the best choice for the care of their child,” Kinnett said.

One comment

  1. Jaron says:

    My dad is 60 years old. He was diagnosed with MD when he was 20. The most he can move alone is from his scooter to the toilet and from the scooter rack on the back of his jeep he can shimmy along side the car and plop down in the drivers seat. I think he would be a prime test case for anyone developing this sort of technology. He is an amazing guy who tries to see the best in everything and would be so happy to contribute to any experimentation going on towards helping those with MD. We can fly out and meet anywhere in the world and stay as long as needed. If anyone can put me in touch with a research team that might be interested in using him for testing please respond to this post with how to get in touch. Thank you

Leave a Comment

Your email address will not be published. Required fields are marked *