According to The Morning Call, 23-year-old DeSales University graduate Derek Szena desperately wants to visit Disney World, but the cost of getting there and taking the nursing staff that he needs with him would cost more than $15,000.
Speaking with the newspaper on January 19, Szena said he got the idea to travel after watching the film The Fundamentals of Caring which features a Duchenne MD patient and his carer undertaking a road trip.
Szena from Lehighton, Pennsylvania would need three nurses to provide the 24-hour care that he requires, including cleaning his feeding tube, feeding him and looking after his ventilator. To raise the finances needed to take the trip in April he set up an online fundraising page, but he had only managed to raise $70 before he was first interviewed by the newspaper.
Thankfully, Szena’s story touched the hearts of people in his community and with just a couple of months to go, his fundraising page now stands at $12,000 making his dream look more like a reality.
Muscular Dystrophy News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.