Caring for People With Congenital Muscular Dystrophy


In this video from Muscular Dystrophy UK, Dr. Ros Quinlivan from the Queen’s Square Centre for Neuromuscular Diseases in London talks about healthcare for people living with congenital muscular dystrophy.

MORE: Four treatment areas for muscular dystrophy

Dr. Quinlivan explains that CMD covers a wide range of neuromuscular diseases where symptoms present at birth or in early childhood. Children who have congenital MD will often have other complications as well as muscle involvement, including difficulties swallowing and breathing and recurring chest infections. This means they’ll need constant monitoring.

The care for children living with CMD is complex and involves many different areas of health and social care to manage their everyday needs.

MORE: Six complications of muscular dystrophy

Muscular Dystrophy News Today is strictly a news and information twebsite about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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